April 2018 National e-update for Transforming Care Partnerships

Attachments:
easy_read_April_2018_TCP
Conference flyer

Dear all

Please find below and attached latest updates from the national Transforming Care programme including:

Coming up!
New learning disability guideline to give people care closer to home
New transforming care finance group
Behaviour that challenges: Planning services for people with learning disabilities and/or autism who sexually offend
New Housing Leads for Transforming Care
How Summary Care Record (SCR) with additional information (AI) can help people with a learning disability
Webinar; Promoting good postural care to improve health outcomes
Workforce planning and education support

Please share the attached easy read version and we welcome any feedback from about what’s useful. england.learning.disability@nhs.net

Thanks and best wishes,

NHS England’s learning disability programme

Diary dates and what’s coming up at a glance

Webinar: Promoting good postural care to improve health outcomes – 24 April, 12:30-1pm

In this webinar, Anna Marriott, of the National Development Team for Inclusion, will give an overview on: what postural care is and the importance of it; the benefits of postural care; the barriers to good postural care; what we know about what works and good practice examples/case studies; links to resources. More details are included below. To receive an invitation, please email LDT@phe.gov.uk

A showcase for excellence in palliative care provision for people with a learning disability – 13 June, London

This conference is for anyone helping to support someone with a learning disability who is reaching the end of life, and those who are bereaved. It includes keynote speeches from NHS England’s National Clinical Directors for palliative care and for learning disabilities – Professor Bee Wee and Dr Jean O’Hara. Please see the attached flyer and visit www.pcpld.ord

On Friday 6 April, The Department of Health and Social Care and NHS England launched a joint consultation on extending the legal rights to have a personal health budget or integrated personal budget. As part of a national drive to personalise health and social care services and provide people with more choice and control, the Government and NHS England are asking for views on proposals to extend existing legal rights to have a personal health budget, or where appropriate an integrated budget to:

People with ongoing social care needs, who also make regular and ongoing use of relevant NHS services
People eligible for Section 117 aftercare services, and people of all ages with ongoing mental health needs who make regular and ongoing use of community based NHS mental health services
People leaving the Armed Forces, who are eligible for ongoing NHS services
People with a learning disability, autism or both, who are eligible for ongoing NHS care
People who access wheelchair services whose posture and mobility needs impact their wider health and social care needs.

The consultation also seeks views on whether people who have a right to a personal health budget should also have the right to receive this as a direct payment, and welcomes views on additional funding streams that could be incorporated into integrated budgets.

This consultation follows the Secretary of State for Health and Social Care’s speech on social care reform last month and is open until Friday 8 June 2018.

Reducing reliance on hospital

New learning disability guideline to give people care closer to home

NICE has published a new guideline, which aims to improve care for children, young people and adults with learning disabilities, who have behaviour that challenges.

The new guideline suggests local authorities and clinical commissioning groups should take joint responsibility and put one person, who has experience of working with people with learning disabilities and behaviour that challenges, in charge of designing services.

This lead commissioner should work together with people using services and their families to develop a clear plan to support people with learning disabilities and challenging behaviour. They should base the plan on good local evidence such as local registers. Budgets and resources should be pooled across health, social care and education.

NICE also says people with a learning disability and behaviour that challenges should not be admitted to inpatient units unless all other possible options have been considered and exhausted. The guideline emphasises the need to plan ahead to reduce the chances of a crisis arising and calls for resources to be in place to respond quickly, for example by providing an out-of-hours helpline.

We wanted to ask your help in spreading the word about the guideline. You could include the above information in your newsletters/on your website and tweet messages using @NICEcomms in your message.

NICE has also produced an easy read version of the guideline so that people with learning disabilities, their families, friends or carers can understand what help and support they could be getting and how their needs should be met.

New transforming care finance group

We’ve had feedback from a number of TCPs on issues relating to how funding flows around the system to support transformation. Following that feedback, we have established a new cross-system transforming care finance group, including representation from NHS England, CCGs and local government, to look at issues of concern. The group has now had its first meeting and is reviewing some of the issues raised by TCPs, such as the way the Funding Transfer Agreement (FTA) works for moving funds from NHSE specialised commissioning to local commissioners. We will keep you updated on progress and are grateful for the input of colleagues from across the system in giving us feedback on the issues you’re facing.

If you are interested in giving feedback, please contact england.learning.disability@nhs.net

Building support in communities

Behaviour that challenges: Planning services for people with learning disabilities and/or autism who sexually offend

http://www.prisonreformtrust.org.uk/Portals/0/Documents/Behaviour%20that%20challenges.pdf

Compared to the general population, offenders have disproportionately higher burdens of health and social care needs and people with a learning disability, autism or both can face even greater burdens. Joint training between health, social care and justice agencies can help identify shared priorities and break down some of the barriers and misunderstandings that often exist between different professional groups and sectors. For example, having a shared understanding of ‘risk’ and the factors that can impede positive risk taking, are especially pertinent.

Building on a seminar held in May 2017, this briefing paper provides a stimulus for further discussion. It brings to the fore the plight of an especially marginalised group of people, and the challenges they face, describes positive practice examples and proposes recommendations for improved outcomes.

New Housing Leads for Transforming Care

NHS England has recruited nine new Housing Leads into the Transforming Care programme to support TCPs to plan for the accommodation required to enable those with a learning disability and/or autism to live in the community. These staff include:

NORTH

Philippa Hughes

Fred Grand

Jane Bellwood

MIDLANDS and EAST

Gill Leng

Andy Kyle

Wendy Hicks

SOUTH

Lee Simmonds

Amy Swan will continue to manage the housing work stream as the National Housing Lead, but will also pick up responsibilities as the London Housing Lead.

Improving quality of care, quality of health and quality of life

How Summary Care Record (SCR) with additional information (AI) can help people with a learning disability

Over 96% of people in England have a Summary Care Record (SCR) which contains key information from their GP record. This includes information about their medication and any allergies or adverse reactions to medicines that they may have. Summary Care Records can be accessed by authorised clinicians treating patients away from their GP practice. Patients can choose to have additional information shared through their Summary Care Record by providing explicit consent to their GP practice.

The national clinical templates for Annual Health Checks developed with the GP clinical system suppliers provide a systematic approach to the Annual Health Check and allow consent (or a best interest’s decision) for Summary Care Records with additional information to be sought for all patients with Learning Disabilities. (http://www.rcgp.org.uk/clinical-and-research/resources/toolkits/health-check-toolkit.aspx)

With patient consent, important medical information and care preferences which can be confirmed and updated as part of the health check process will be added to the GP record and automatically included in the patient’s Summary Care Record. This could include:

Details of the learning disability
Details of associated physical and sensory disability
Communication needs
Contact details for carers and next of kin
Details of the Annual health check or Health action plan
Key workers and care services involved in the care of the patient
Details of those people with Lasting Power of Attorney

SCR with additional information can help patients with learning disabilities because medical staff can see details about the patient’s medical history and understand the support needs of the patient.

Further information and resources can be found on the SCR additional information web page: https://digital.nhs.uk/services/summary-care-records-scr/additional-information-in-scr

For help with implementation or further questions please contact the SCR Team at: scr.comms@nhs.net

Webinar: Promoting good postural care to improve health outcomes

Tuesday 24 April, 12:30-1pm

The term ‘postural care’ is used to describe any intervention that helps protect body shape. Poor postural care can affect people who find it hard to move or spend a long time in a limited number of positions, whether this is due to a disability, a stroke or old age. Whilst this webinar will focus on what we know about postural care for people with profound and multiple learning disabilities there will be wider implications for other groups of people. Consequences of poor postural care can be severe and life-threatening.

In this webinar, Anna Marriott, of the National Development Team for Inclusion, will give an overview on:

what postural care is and the importance of it
the benefits of postural care
the barriers to good postural care
what we know about what works and good practice examples/case studies
links to resources

Jayne Leeson, the Chief Executive of Changing our Lives, will talk about:

the national working group on postural care
the national strategy which highlights best practice and makes recommendations for the future

This webinar is aimed at NHS and public health colleagues, local authorities, commissioners and other stakeholders who have an interest in supporting people with postural care needs. Slides will be circulated prior the webinar, you can join by skype or telephone. To receive an invitation, please email LDT@phe.gov.uk

Workforce planning and education support

Workforce partners Skills for Health, Skills for Care, Health Education England are supporting you to workforce plan and design education programme for the whole of England this includes actions to:

train and help you to write and implement local workforce and education plans.
undertake workforce information survey and analysis, including identifying addressing gaps in intelligence
identify good practice to help the Children and Young People and Adult Learning Disability and/or Autism workforce and ultimately the support/ care offered
identify education and qualifications pathways for the children and young people and adult learning disability and/or autism workforce
engage effectively with key stakeholders

Contact your local workforce leads:

North

Health Education England: Tim.Devanney@hee.nhs.uk

Skills for Care: Christine.burkett@skillsforcare.org.uk / Sally.gretton@skillsforcare.org.uk

Skills for Health: tim.lund@skillsforhealth.org.uk

Midlands and East

Health Education England: lisa.proctor@hee.nhs.uk

Skills for Care: Renny.wodynska@skillsforcare.org.uk / James.cross@skillsforcare.org.uk

Skills for Health: marc.lyall@skillsforhealth.org.uk

London

Skills for Care: margaret.sharpe@skillsforcare.org.uk

Skills for Health: jim.moran@skillsforhealth.org.uk