Use this page to find reports and projects we have supported along with any related resources and tools (all for free).
Tip: If you know which project you are looking for just press F3 on your keyboard and search for the project name name.
Select a topics
Anticipatory Care
Anticipatory Care Calendar
Anticipatory Care Calendar validation Report, Jan 2019 (Kent Community Health NHS Foundation Trust) PDF, 1.22MB, 32 Pages
Anticipatory care calendar validation (HEEKSS summary) PDF, 382.75KB, 5 Pages
How to Access the Anticipatory Care Calendar (Instructions) PDF, 466KB, 4 pages
Children and young people
- Exploring the Education, Training & Support Needs of those who Provide Care for Children & Young People with Learning Disabilities and Learning Difficulties
- Getting Transition Right
Exploring the Education, Training & Support Needs of those who Provide Care for Children & Young People with Learning Disabilities and Learning Difficulties
Exploring the Education, Training & Support Needs of those who Provide Care for Children & Young People with Learning Disabilities and Learning Difficulties – Easy Read Report PDF, 3 MB, 19 pages
Exploring the Education, Training & Support Needs of those who Provide Care for Children & Young People with Learning Disabilities and Learning Difficulties – Full Report PDF, 2899KB, 29 pages
Getting Transition Right
Getting Transition Right – Full Report PDF, 756KB, 30 pages
Getting Transition Right – Easy Read Report PDF, 4.72MB, 9 pages
Communication
Picture Exchange Communication System Report 2018
Picture Exchange Communication System Report (PECS) Report, Nov 2018 (Optima Care) PDF, 435KB, 7 Pages
How we taught our staff and the people we support to communicate (Easy read version) PDF, 2.4MB, 7 Pages
Community of Practice
- Kent, Surrey and Sussex & Greater London Community of Practice: Final Evaluation 2020
- Kent, Surrey and Sussex Learning Disability Community of Practice Sustaining our Community Conference Evaluation 2018
- Building our Community: Consultation events for the Greater London Learning Disability Practitioner Community 2018
- Kent, Surrey and Sussex Learning Disability Community of Practice: Building our Community Evaluation 2017
- Kent, Surrey and Sussex Learning Disability Community of Practice: Conference evaluation 2016
Kent, Surrey and Sussex & Greater London Community of Practice: Final Evaluation 2020
Kent, Surrey and Sussex & Greater London Community of Practice Final Evaluation Full Report 2020 PDF, 1MB, 28 Pages
Kent, Surrey and Sussex & Greater London Community of Practice Final Evaluation Report 2020 – Easy Read PDF, 1MB, 18 Pages
Kent, Surrey and Sussex Learning Disability Community of Practice Sustaining our Community Conference Evaluation 2018
Kent, Surrey and Sussex Learning Disability Community of Practice Sustaining our Community Conference Evaluation 2018 PDF, 3.77MB, 28 Pages
Building our Community: Consultation events for the Greater London Learning Disability Practitioner Community 2018
Building our Community: Consultation events for the Greater London Learning Disability Practitioner Community (BILD 2018) PDF, 1.29MB, 23 Pages
Kent, Surrey and Sussex Learning Disability Community of Practice: Building our Community Evaluation 2017
Kent, Surrey and Sussex Learning Disability Community of Practice: Building our Community Evaluation 2017 (BILD 2017) PDF, 6.97MB, 57 Pages
Kent, Surrey and Sussex Learning Disability Community of Practice: Conference evaluation 2016
Kent, Surrey and Sussex Learning Disability Community of Practice: Conference evaluation 2016 (Daniel Marsden & Claire Fields November 2016) PDF, 872KB, 19 pages
Deafblind
Working with Deaf and Blind Clients
Final report: HEEKSS deafblind project (Southdown, June 2018) PDF, 309KB, 17 Pages
Final Report: HEEKSS funded deafblind project Easy Read summary PDF, 1.61MB, 14 Pages
Employment
- Employing People with Learning Disabilities: Five year forward view – Our Learning Disability pledge
- Report of the #IDHEKSS Staff Recruitment & Retention Coaching Program
Employing People with Learning Disabilities: Five year forward view – Our Learning Disability pledge
Five Year Forward View: Our Learning Disability Pledge: Employing people with a Learning Disabilities Report Dec 2018 (East Kent Hospitals University NHS Foundation Trust) PDF, 1.74MB, 41 Pages
Learning Disability Pledge: What we are doing to employ more people with learning disabilities (Easy Read) PDF, 13.6MB, 16 Pages
Report of the #IDHEKSS Staff Recruitment & Retention Coaching Program
Report of the #IDHEKSS Staff Recruitment & Retention Coaching Program (Heike Guilford April 2017) PDF, 537KB, pages 24
Report of the #IDHEKSS Staff Recruitment & Retention Coaching Program Easy Read Summary (Heike Guildford April 2017) PDF, 905KB, pages 22
End of Life care
- Supporting People with Learning Disabilities at end of life: A summary report of a training programme to increase staff skills to enable people to meet their wishes at end of life
- Communicating Effectively & Ethically with Young People with Learning Disabilities and their Families regarding End of Life Care Planning
Supporting People with Learning Disabilities at end of life: A summary report of a training programme to increase staff skills to enable people to meet their wishes at end of life
- Appendix 1 -resource book EoLC_ LD project
- Appendix 2 – Evaluation responses
- Appendix 3 – 1 AHSN Presentation
- Appendix 3 – 2 Induction training – EOL
- Appendix 3 – 3 BBN Presentation
- Appendix 4 Word cloud
- Appendix 5 – Example of care planning
- Appendix 6 – 1 H
- Appendix 6 _ 4
- Appendix 6 _ 5
- Appendix 6 _ 6 V4 Evaluation Report KCHFT Pilgrims Hospice CCCU End of Life Care LD Project 19.7.18
How can we support people with learning disabilities with end of life care? Easy Read Summary Report PDF, 1.05MB, 5 Pages
Communicating Effectively & Ethically with Young People with Learning Disabilities and their Families regarding End of Life Care Planning
End of Life Care Planning with Young People with Learning Disabilities and their Families YouTube video (International Care Ethics Observatory, Surrey University April 2018) YouTube, 13 minutes 21 Seconds in length
Epilepsy
Epilepsy and Medication Administration Train the Trainer
HEEKSS funded epilepsy awareness and Buccal Midazolam administration ‘train the trainer’ project PDF, 480KB, 23 Pages
HEEKSS funded epilepsy awareness and Buccal Midazolam administration ‘train the trainer’ project Easy Read Summary PDF, 1.28MB, 15 Pages
Experts by experience
- Evaluation of the LOUD (Learning; Observing; Understanding; Disability) Co-teacher Consultant Group at Canterbury Christ Church University
- Workforce development for people with intellectual disabilities: the perspective from people with intellectual disabilities
Evaluation of the LOUD (Learning; Observing; Understanding; Disability) Co-teacher Consultant Group at Canterbury Christ Church University
An Evaluation of “LOUD” (Canterbury Christ Church University 2018) PDF, 198KB, 12 Pages
LOUD evaluation report (lay version) Docx, 809KB, 18 Pages
How Good Is LOUD Report (accessible version) PDF, 1.33MB, 11 Pages
Workforce development for people with intellectual disabilities: the perspective from people with intellectual disabilities
Workforce development for people with intellectual disabilities: the perspective from people with intellectual disabilities (Foundation for people with Learning Disabilities September 2016) PDF, 2.50MB, 39 pages
Families
- Developing staff skills to work with effectively with families to support the delivery of the transforming care agenda
- Delivering Different News 2
- Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals – a Research and Training Project
- Supporting the Delivery of Good Practice in Maternity Services for Parents with Learning Disabilities
Developing staff skills to work with effectively with families to support the delivery of the transforming care agenda
Developing staff skills to work with effectively with families to support the delivery of the transforming care agenda in Sussex FINAL (Sussex Partnership NHS FT 2022) PDF, 393KB, 30 Pages
Developing staff skills to work with effectively with families to support the delivery of the transforming care agenda in Sussex EASY READ FINAL PDF, 635KB, 6 Pages
Delivering Different News 2
Delivering Different Study 2 Report
Delivering Different News 2 Easy Read Report
click here to access project resources
Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals – a Research and Training Project
Improving the Delivery of Different News Study Report (Institute of Health Visiting March 2019) PDF, 6.02MB, 76 Pages
Improving the delivery of different news study Executive Summary (Institute of Health Visiting March 2019) PDF, 218KB, 7 Pages
Improving the Delivery of Different News Easy Read Version PDF, 6.50MB, 5 Pages
Click here to access project resources
Supporting the Delivery of Good Practice in Maternity Services for Parents with Learning Disabilities
Together Project Final Report PDF, 9MB, 221 pages
Together Project Executive Summary PDF, 861 KB, 10 pages
Together Easy Read Summary PDF, 776 KB, 4 pages
University of Surrey – The Together Project Website
Health Navigation
Improving the uptake of Learning Disability Annual Health Checks across London and the South of England 2021
Appendix 3: Findings from a survey to assess awareness, benefits, barriers, and facilitators to take-up of learning disability health checks 2019 (Skills for Care) PDF, 716KB, 67 Pages
EASY READ: A report about how more people with learning disabilities can have health checks PDF, 830KB, 7 Pages
Medical workforce
Evaluation and Identification of Workforce Needs to Support People with Intellectual Disability across Kent, Surrey and Sussex 2021
Evaluation and Identification of Workforce Needs to Support People with Intellectual Disability across Kent, Surrey and Sussex Full Report PDF, 3 MB, 64 Pages
Evaluation and Identification of Workforce Needs to Support People with Intellectual Disability across Kent, Surrey and Sussex East Read PDF, 687 KB, 5 pages
Mental Health
Obesity
The DAMSON project
Dietary Approaches for Metabolic Syndrome, Obesity and improved Nutrition: The DAMSON project. Final Evaluation Report (Kingston University and St Georges University of London) PDF, 1.51MB, 36 Pages
Dietary Approaches for Metabolic Syndrome, Obesity and improved Nutrition: The DAMSON project. Lay Report PDF, 1.04MB, 11 Pages
DAMSON Project. Easy read summary PDF, 587KB, 2 Pages
Online DAMSON cookbook FREE TO ALL Website
Outcome tools
Health Equalities Framework Intelligence Review
Summary Report: for Health Education England Kent Surrey and Sussex sponsored projects undertaken by Kent Community Health NHS Foundation Trust’s Learning Disability Services 2017 PDF, 200KB, 8 Pages
2016-2017 Projects supported by Health Education England working across Kent Surrey Sussex Easy Read Summary PDF, 592KB, 8 Pages
Data Intelligence Report: Kent Learning Disabilities 2017 PDF, 1.14MB, 20 Pages
Health Equalities Framework Validation Report 2017 PDF, 399KB, 17 Pages
Positive behavioural support
Surrey Positive Behaviour Support Network Coaches Training
Surrey PBS Behaviour Support Network Full Report
Surrey PBS Behaviour Support Network Easy Read Report
Surrey PBS Behaviour Support Network Training Material Extract – Appendix 1
Surrey PBS Behaviour Support Network Training Material Extract Appendix 2
Recovery college
Service redesign
- Springwell Project – supporting people with learning disabilities to have a voice in their care 2019
Springwell Project – supporting people with learning disabilities to have a voice in their care 2019
Springwell Project – supporting people with learning disabilities to have a voice in their care – Project Report 2018 (Sussex Partnership NHS Foundation Trust) PDF, 1.24MB, 20 pages
Springwell Project – supporting people with learning disabilities to have a voice in their care – Easy Read Summary 2018 PDF, 792KB, 5 Pages
All videos and materials developed to support this project are freely available at : https://www.sussexpartnership.nhs.uk/springwell
Simulation
Longitudinal evaluation of the use of interprofessional, interdisciplinary simulation training surrounding intellectual disabilities across the lifespan 2019
Longitudinal evaluation of the use of interprofessional, interdisciplinary simulation training surrounding intellectual disabilities across the lifespan – Executive Summary PDF, 1.02MB, 9 Pages
Long term evaluation of simulation training surrounding learning disabilities health across the lifespan – Easy Read summary PDF, 1.92MB, 15 Pages
Journal publication: improving clinical practice through simulation training on intellectual disabilities a longitudinal study PDF, 139KB, 12 Pages
Training
- The Autism Core Capabilities rEPosiTory (ACCEPT) Project 2021
- LD Champion training 2019
- Core Capabilities Framework for Supporting Autistic People 2019
- What difference does a MOOC make? A Preliminary Review 2019
- Reasonable Adjustments multidisciplinary team/provider workshop reports 2018
The Autism Core Capabilities rEPosiTory (ACCEPT) Project 2021
- The Autism Core Capabilities rEPosiTory (ACCEPT) Project: Executive Summary and Highlights 2021 PDF, 348KB, 8 Pages
- The Autism Core Capabilities rEPosiTory (ACCEPT) Project: Final Report 2021 PDF, 862KB, 39 Pages
- About the Autism Core Capabilities rEPosiTory (ACCEPT) Easy read version PDF, 759KB, 8 Pages
- Link to resources; directory of training, gap analysis, delphi survey, easy read documents, videos
LD Champion Training 2019
Treat Me Right! A report on LD champion Training 2019 (Certitude) PDF, 6.32MB, 36 Pages
Easy Read Summary LD Champion Training Report (2019) PDF, 562KB, 6 Pages
Core Capabilities Framework for Supporting Autistic People 2019
Core Capabilities Framework for Supporting Autistic People 2019 (Department of Health and Social Care) PDF, 1.31MB, 104 Pages
Easy Read – Core Capabilities Framework for Supporting Autistic People PDF, 13.2MB, 64 Pages
What difference does a MOOC make? A Preliminary Review 2019
What difference does a MOOC make? A preliminary Review 2019 including easy read (London South Bank University) PDF, 1.07MB, 22 Pages
Reasonable Adjustments multidisciplinary team/provider workshop reports 2018
HEEKSS Reasonable Adjustments Workshop Evaluation Report Final, Dec 2018 (East Kent Hospitals University NHS Foundation Trust) PDF, 3.34MB, 59 Pages
Reasonable Adjustments Workshop Evaluation Report Easy to Read Summary Final PDF, 624KB, 2 Pages
Transition
Vision
A Bridge to Vision; Identifying sight loss – Creating opportunity
Easy read – Vision training report (2020) PDF, 307KB, 5 Pages
Associated resources: poster and workbooks
Workforce Development for & with People with Intellectual Disabilities 