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LIVE UPDATES: Intellectual Disability Workforce Programme pilot & projects currently in progress

This page only holds details of pilot projects currently in progress completed projects with reports, tools and materials can be found at https://idhekss.wordpress.com/reports/id-hee-project-reports/

Indexed by lead organisation: 

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ABC

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Title of pilot project: Positive Behaviour Support Workforce Training

Lead organisation:  The Avenues Trust Group

Aims and objectives: Avenues is working towards being able to position itself as a mini academy for PBS. This project is aimed to improve care particularly for people with complex needs including behaviour that challenges. The training is for Avenues staff, including support workers, practice leaders and development leads as well as for families, carers and advocates. The programme is aimed at building on the PBS and Active Support training programmes already in place.

The training programme is also to be offered to smaller providers across Kent, Surrey and Sussex in order to help sustaining this work in the region. A conference is planned where the results of this work are to be disseminated.

In addition to the Challenging Behaviour Foundation Programme which will be tutor led, some staff will undertake a BTEC Award in PBS via e learning. A Practice Development Lead will also undertake the MA in Intellectual and Development Disabilities.

Project lead: Shane Carroll – Group OD Manager

Email contact: shane.carroll@avenuesgroup.org.uk

Web address: https://www.avenuesgroup.org.uk/

Twitter: @avenuesgroup

Start & end dates:  June 2016 – February 2019

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Title of pilot project: Learning, Observing, Understanding Disability (LOUD) Co-Teacher Consultant Group

Lead organisation: Canterbury Christ Church University

Aims and objectives: LOUD was launched in in 2015 and is establishing itself as a powerful force for change within the university.

Its objectives are to monitor and develop teaching in learning disability, and it runs parallel to the established “Learning Disability Education Group”, which shares the same mission, and which is comprised of academic and practice staff, and students. Because of the wide-ranging and often complex discussions that take place at this group, it was thought that any direct service user involvement in it could only be tokenistic, hence the need for and establishment of LOUD.

Project lead: Cathy Bernal – Recruitment Lead for Mental Health Nursing and Senior Lecturer in Learning Disability

Email contact: cathy.bernal@canterbury.ac.uk

Web address: https://www.canterbury.ac.uk/

Twitter: @CanterburyCCUni

Start & end dates:  January 2016 – July 2018 – PUBLICATION PENDING

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DEF

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Title of pilot project: Learning Disability Reasonable Adjustments and Mental Capacity Act Workshops

Lead organisation: East Kent Hospital University NHS Foundation Trust (EKHUFT)

Aims and objectives: This project is a collaboration between East Kent Hospitals University NHS Foundation Trust and the Kent, Surrey & Sussex Learning Disability Community of Practice. The workshops are designed for non learning disability specialist healthcare professionals across the whole system to gain an understanding of the national and local evidence base relating to access to health care and health inequalities. The workshops will support participants to reflect upon their care environment, pathways and delivery. They will gain a personal perspective on learning disabilities from experts by experience, and a working understanding of “reasonable adjustments”.

Project lead: Rags Subramaniam – Director Services and Medical Education Manager, EKHUFT

Email contact: ragssubramaniam@nhs.net

Web address: www.ekhuft.nhs.uk & www.ldcop.org.uk

Twitter: @EKHUFT & @kssldcop

Start & end dates:  December 2016 – March 2018 – PUBLICATION PENDING

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Title of pilot project: Employing People with Learning Disabilities

Lead organisation: East Kent Hospital University NHS Foundation Trust (EKHUFT)

Aims and objectives: This project builds on work already undertaken at EKHUFT, as well as the Five Year Forward Report recommending that NHS organisations employ more people with learning disabilities. The project aims to conduct a 5 year Bright Futures evaluation review report including outcome measures. Human Resource expertise will then be used to identify and care new roles specifically for people with learning disabilities, and then liaising directly with external organisations who can provide support in filling these roles.

Project lead: Twyla Mart – Resourcing Manager, EKHUFT

Email contact: twyla.mart@nhs.net

Web address: www.ekhuft.nhs.uk

Twitter: @EKHUFT

Start & end dates:  July 2016 – December 2017 – PUBLICATION PENDING

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GHI

Title of pilot project: Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals – a Research and Training Project

Lead organisation: The Institute of Health Visiting

Aims and objectives:

  • To develop a training programme to improve the process of delivering different news to mothers to be and their families
  • To conduct an evaluation of the training intervention to assess acceptability, feasibility, and optimal design for future roll out of the intervention.

Specific objectives are:

  • To describe and explain the lived experience of receiving different news from a health professional.
  • To describe and explain the lived experience of providing different news to families by health care professionals.
  • To identify training needs for healthcare professionals who deliver different news.
  • To develop an intervention manual to enable delivery of training to healthcare professionals.
  • To pilot the intervention and assess the feasibility and acceptability of providing the intervention.

Project lead: Dr Esther Mugweni – Research Lead

Email contact: esther.mugweni@ihv.org.uk

Web address: https://ihv.org.uk/

Twitter: @ihealthvisiting

Start & end dates:  April 2017 – April 2018

The Huntercombe Group

Title of pilot project: A Recovery College – the Collaborative Development, Recruitment and Provision of Training of Peers Tutors

Lead organisation: The Huntercombe Group (Cedar House Hospital)

Aims and objectives: The CQUIN requirement for a Recovery College requires the collaboration of clinicians, with those with lived experience of mental health issues, in the development of the college to ensure that patient centred care is central at all stages of the development of the college.

The aims and learning  objective are:

Aim 1:

  • To work collaboratively with lived experience consultants to develop a college curriculum which marries the evidence base in this area of recovery, lived experience and clinician input.

Learning Objectives:

  • Develop a strategic business plan for the inception of the Recovery College.
  • Ensure collaboration between those with lived experience of mental health issues and clinicians, in order that a patient centred approach is central to each stage of the planning process.

Aim 2:

  • To provide knowledge and skills around training development and delivery in the context of recovery education.

Learning Objectives:

  • Experienced and reflected on the theory and process of how adults learn
  • Considered how our learning styles impact on training delivery
  • Explored how to create a positive learning environment
  • Practised designing learning aims and objectives for a course
  • Practised designing a training structure and plan
  • Identified challenges, benefits and explored modelling equality in the co-production/ co‐training relationship
  • Developed strategies on how to manages challenges that can occur in
  • training environment
  • Prepared and delivered a micro teaching session and received structured support

Project lead: Susan Hart – Head of Education and Therapy

Email contact: Susan.hart@huntercombe.com

Web address: https://huntercombe.com/

Twitter: @huntercombethg

Start & end dates:  March 2017 – October 2018

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JKL

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Title of pilot project: Health Equalities Framework Intelligence Review

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: This project aims to test the reliability of the Health Equalities Framework and analyse assessments based upon initial presentation through a series of systematic auditing to establish a baseline of health needs for the learning disability population in Kent over a 12 month period.

Taking a multidisciplinary approach, it is hoped that this project will result in a better understanding of the current and future needs of people with learning disabilities in Kent, which will lead to the planning and development of a class leading workforce.

Project lead: Shane Webber – Consultant

Email contact: m.dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  April 2016 – May 2017 – PUBLICATION PENDING

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Title of pilot project: Implementation of the Anticipatory Care Calendar

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: This project aims to introduce and implement the Anticipatory Care Calendar to providers (both residential and support living) across the South Kent Coast CCG region. This catchment area is the most densely populated within the county and therefore offers the greatest opportunity to develop the project to its full potential.

The Anticipatory Care Calendar is a simple tool designed to improve daily health surveillance. It overcomes barriers that can prevent people with both learning disabilities and dementia accessing health services. It is designed to alert staff to health changes and prompts appropriate access to primary care.

Implementation of this project will include liaising with Academic Health Science Networks to provide train-the-trainer sessions to both providers and community nurses.

Project lead: Sue Marsden – Specialist Community Matron (Learning Disabilities)

Email contact: susie.marsden@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  April 2016 – May 2017 – PUBLICATION PENDING

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Title of pilot project: My Health Navigator – Establishing a Multi-Agency and Multi-Disciplinary Workforce Model and Competences

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: Evidence based practice has established that the safest and most effective personalised care can only be provided if a co-ordinated method is adopted. A suggested answer to this need for effective co-ordination in complex physical healthcare is a My Health Navigator role. This would be undertaken by a LD professional whose aim would be maximise co-ordinated and anticipatory care from a multi-professional and multi-agency perspective.

My Health Navigator approach will achieve:

  • Help create a better quality of life for people with learning disabilities
  • Reduce burden on A& E and inpatient services
  • Utilise health resources more and improve efficiency
  • Provide a stronger sense of security and better ability to self-manage health for people with learning disabilities
  • Increase and improve understanding on the navigation in the health and social care system
  • A positive response to CIPOLD for people within Kent
  • Establish My Health navigator model across specialist, universal, primary care and acute health services across Kent
  • Develop multi-agency and multi-organisation partnerships to reducing health inequalities (demonstrating using HEF and other frameworks)
  • Develop multi-agency and multi-organisation frameworks, care pathways for people with LD with priority needs – eg Dysphagia

This proposal supplements the My health navigator role by aiming to:

  • Facilitate involvement of experts (people with learning disabilities) who are employed by KCHFT working on the project to inform personalisation focus.
  • Establish workforce requirements across the health sector in delivering My Health Navigator
  • Provide training – through train the trainer sessions and E-Learning on My Health Navigation
  • Support unqualified/residential workforce through training (ELearning)
  • Provide Training for those undertaking who are peoples My Health Navigator (including chairing complex and challenging meetings)
  • Provide thematic analysis on workforce and issues
  • Support end of life care and transition

Project lead: Matt Dodwell  – Head of Service – Learning Disabilities

Email contact: M.Dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  April 2017 – March 2018 – PUBLICATION PENDING

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Title of pilot project: Supporting People with Learning Disabilities at End of Life: A Training Programme to Increase Staff Skills to Enable People to Meet Their Wishes at End of Life

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: This project involves education in end of life care. This project will help improve the knowledge within Pilgrims Hospice, Kent, of people with a learning disability. In return, Pilgrims Hospice will be involved in the skills development of nurses, therapist and support staff providing care to people with a learning disability.

Learning outcomes, through a series of two day workshops include:

  • Staff will have increased knowledge with reference to current guidance in evidence based patient care for someone approaching end of life
  • Staff will have examined what is important for individuals,  carers, friends & family at end of life
  • Staff will have considered practical ways to improve comfort and dignity at end of life
  • Staff will have developed improved confidence to communicate any changes in condition to relevant teams and support services
  • A more developed understanding of the importance of multidisciplinary working at end of life to deliver person centred care
  • Increased knowledge by staff of who to refer to when individual may have symptoms at end of life and understanding use of key assessment tools both generic and specialised for people with a learning disability.
  • Increased awareness of National policy, including NICE guidance, Ambitions for end of life.

Project lead: Matt Dodwell  – Head of Service – Learning Disabilities

Email contact: M.Dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  March 2017 – April 2018


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MNO

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Title of pilot project: Picture Exchange Communication System Training

Lead organisation: Optima Care Ltd

Aims and objectives: Level 1 (Basic) Picture Exchange Communication System Training is being provided for staff. The course will enable staff to learn how to implement the six phases of PECS. Participants will have an understanding of how to implement PECS with individuals with autism, related developmental disabilities, and/or limited communication skills. The staff will then be able to become “PECS Champions” coaching and mentoring other staff in what good communication practice is and being responsible for the implementation of the system within their service.

Project lead: Christina Harrison – Training Manager

Email contact: Christina.Harrison@optimacare.co.uk

Web address: www.optimacare.co.uk/

Twitter: @shineoptimacare

Start & end dates:  June 2016 – June 2017 – PUBLICATION PENDING

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PQRS

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Title of pilot project: Working with Deaf and Blind Clients

Lead organisation: Southdown Housing Association

Aims and objectives: Southdown Housing Association supports clients who as well as having a learning disability are deaf and blind. Caring for these clients require a very specific set of knowledge and skills. Southdown have already commissioned team training from Sense, which provided an introduction to working with clients with these complex needs. This project is aimed at further developing this training, again using Sense, focusing on the specific needs of the individuals and based on the Sense trainer’s observation of the staff working with them.

The training is expected to result in the clients being able to better understand and communicate because the staff will be more skilled in developing the clients’ communication skills. This will improve the personalised support the clients are already receiving.

Project lead: Jenny Spaull – Training Manager

Email contact: J.Spaull@southdownhousing.org

Web address: https://www.southdown.org/

Twitter: @southdownha

Start & end dates:  April 2016 – March 2018 – PUBLICATION PENDING

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Title of pilot project: Epilepsy and Medication Administration Train the Trainer

Lead organisation: Southdown Housing Association

Aims and objectives: Southdown Housing Association supports a significant number of clients who as well as having a learning disability also have epilepsy. The aim is to train managers / trainers within the organisation to delivery epilepsy awareness, generic and emergency medication administration training so that staff can :

  • competently administer medication
  • appropriately meet the needs of the people they support with epilepsy – including administering emergency medicine when required/as prescribed
  • appropriately refer on to health services when the needs exceed their expertise/role, before the situation becomes critical
    The aim is to ensure that support workers have the skills (appropriate to their role) to meet these needs so that the client
  • receives personalised/caring/effective support from people with whom s/he has a relationship and experiences fewer (or no) severe health situations/crises that require more invasive procedures or hospital treatment (from strangers)
  • the client makes less call on emergency or expensive (particularly inpatient) health services

Developing in-house trainers overcomes difficulties already encountered including accessing sufficient good quality training, builds capacity, ensures sustainability, and enables Southdown to deliver more personalised support.

Project lead: Jenny Spaull – Training Manager

Email contact: J.Spaull@southdownhousing.org

Web address: https://www.southdown.org/

Twitter: @southdownha

Start & end dates:  April 2016 – July 2018

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Title of pilot project: Springwell  – Supporting People with Learning Disabilities and Complex Needs to have a Voice in their Care Planning Process

Lead organisation: Sussex Partnership NHS Foundation trust

Aims and objectives: Springwell is looking to double the number of people with learning disabilities (PWLD) and complex needs playing an active role in their Sussex Partnership NHS Foundation Trust (SPFT) care by July 2017. This project aims to develop and pilot:

  • a new co-produced referral system process that enables people to better manage and engage in the planning of their healthcare
  • standards about engagement and shared decision making for professionals and service users
  • staff training programmes for SPFT and voluntary sector / private organisations that will give them the understanding of how clients want to be engaged in their care plans.

There will be a training programme for staff in SPFT’s mental health and forensic services, improving the skills of staff in non-LD services in supporting PWLD to play an active part in their care. There will also be a training programme for staff in SPFT’s voluntary sector/private partners, improving the skills of all agencies involved in PWLD’s care in supporting PWLD to play an active part in their care. Both training programme will be co-produced by PWLD.

Project lead: Rachael Duke – Head of Charity

Email contact: Rachael.Duke@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  March 2016 – December 2017 – PUBLICATION PENDING

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Title of pilot project: Positive Behaviour Support Training

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: Currently within SPFT there is a small core group of people with high levels of competency in relation to these skills, notably Clinical Psychologists and behavioural practitioners. A number of in-house workshops have been delivered to introduce the basics of PBS and these identified a new for more systematic and skill based training for all staff.

This project will provide 2 day multi professional training for all staff involved with working with clients who display challenging behaviour. At the end of this, they will complete a client based work book which will be assessed by the trainers. All staff will also be offered the opportunity for additional basic competency training.

Staff who have a specific focus in their job plan on working with people with challenging behaviour will then undertake further training, including attendance at PBS workshop and case discussion forums, as well as formal e-learning.

Project lead: Jane Edmonds – Professional Lead for Learning Disability Service

Email contact: Jane.Edmonds@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  April 2016 – November 2017 – PUBLICATION PENDING

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Title of pilot project: Delivering Positive and Proactive Care: a CPD Programme for Managers and Leaders

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: The project will design, deliver and evaluate a training programme for managers of services which support individuals with complex needs and behaviour that challenges, given these managers are responsible for the overall quality of the service and supervision of staff. Building the Right Support (2015) clearly identifies the need for partnership working to train the local workforce within and beyond their organisations.

The programme will comprise of the development of 4 x one day workshops one month apart with a 3 monthly follow up workshop.  This programme will be at an enhanced level to complement existing training related to generic leadership competencies.  The focus will be on the specialist area of developing better quality care for people with behaviour that may challenge.

Project lead: Jane Edmonds – Professional Lead for Learning Disability Service

Email contact: Jane.Edmonds@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  February 2018 – February 2018

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Title of pilot project: CHAT – Carers Health and Training

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: Aims of the Project are that NHS staff will Co-produce a plan with carers to identify:

  • Carer resilience as key workforce partners develop peer learning/ delivery models – co-educators where possible
  • Choice and having a say in the design of specialist health programmes delivered by clinical staff
  • What is available in the community in supporting the people they care for to be well
  • Crisis – what does it look like for carers and how this fits with the developing local Transforming Care plans around crisis prevention and planning
  • Identify when and what carers and families need for the future including integrated health and training programmes to include options such as a dedicated Carer Support Worker role working alongside community teams
  • Identify and trial the nature of any future or additional 1:1 crisis support for carers, care support needs, or joint working with NHS Specialist Team for persons with a learning disability or autistic spectrum conditions and their carers

This will then feed into a bespoke programme of learning, co-designed with local learning disability carer groups across West Sussex and local NHS LD clinicians. Carers Support West Sussex Specialist Team have strong working relationships with health professionals in Health and Social Care Commissioned Service for people with a learning disability and autistic spectrum conditions, and with voluntary organisations.

Project lead: Viki Baker – Director Learning Disability Services

Email contact: viki.baker@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  May 2017 – 2018 to be agreed

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TUV

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WXYZ

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