Updates

LIVE UPDATES: Intellectual Disability Workforce Programme pilot & projects currently in progress

This page only holds details of pilot projects currently in progress completed projects with reports, tools and materials can be found at https://idhekss.wordpress.com/reports/id-hee-project-reports/

Indexed by lead organisation: 

ABC          DEF          GHI          JKL          MNO          PQRS           TUV            WXYZ


ABC

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Title of pilot project: Positive Behaviour Support Workforce Training

Lead organisation:  The Avenues Trust Group

Aims and objectives: Avenues is working towards being able to position itself as a mini academy for PBS. This project is aimed to improve care particularly for people with complex needs including behaviour that challenges. The training is for Avenues staff, including support workers, practice leaders and development leads as well as for families, carers and advocates. The programme is aimed at building on the PBS and Active Support training programmes already in place.

The training programme is also to be offered to smaller providers across Kent, Surrey and Sussex in order to help sustaining this work in the region. A conference is planned where the results of this work are to be disseminated.

In addition to the Challenging Behaviour Foundation Programme which will be tutor led, some staff will undertake a BTEC Award in PBS via e learning. A Practice Development Lead will also undertake the MA in Intellectual and Development Disabilities.

Project lead: Shane Carroll – Group OD Manager

Email contact: shane.carroll@avenuesgroup.org.uk

Web address: https://www.avenuesgroup.org.uk/

Twitter: @avenuesgroup

Start & end dates:  June 2016 – February 2019

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Title of pilot project: Learning, Observing, Understanding Disability (LOUD) Co-Teacher Consultant Group

Lead organisation: Canterbury Christ Church University

Aims and objectives: LOUD was launched in in 2015 and is establishing itself as a powerful force for change within the university.

Its objectives are to monitor and develop teaching in learning disability, and it runs parallel to the established “Learning Disability Education Group”, which shares the same mission, and which is comprised of academic and practice staff, and students. Because of the wide-ranging and often complex discussions that take place at this group, it was thought that any direct service user involvement in it could only be tokenistic, hence the need for and establishment of LOUD.

Project lead: Cathy Bernal – Recruitment Lead for Mental Health Nursing and Senior Lecturer in Learning Disability

Email contact: cathy.bernal@canterbury.ac.uk

Web address: https://www.canterbury.ac.uk/

Twitter: @CanterburyCCUni

Start & end dates:  January 2016 – July 2018 – PUBLICATION PENDING

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Title of project: A Bridge to Vision, Identifying Sight Loss – Creating Opportunity

Lead organisation: Avenues South East

Aims and objectives: Avenues is collaborating with the Royal National Institute for the Blind to deliver training around vision. Ninety staff are to be trained as Vision Champions across 2 services supporting children and young people with LD and complex needs within Kent (including Medway), Surrey and Sussex.

It is aimed at increasing awareness, knowledge and confidence around the identification of potential sight loss, its links to challenging behaviour and an increased confidence in accessing primary eye care services. It is hoped that this in turn will lead to development of behaviour interventions, with functional assessments better informed to take into account vision effecting biological contexts of any challenging behaviour.

The objectives include:

  • Improving the range of skills within the staff team
  • Developing a person centred best practice approach which positively impacts n the quality of life for PWLD
  • Vision Champions being skilled up to share best practice and therefore enrich knowledge and quality of care provided throughout the services.

The training will be offered over six two day training sessions within a 12 month period, with follow up sessions to monitor the implementation of a tool kit. Ongoing support will also be offered to staff.

Project lead: Sarah Kean – Practice Development Lead

Email contact: Sarah.Kean@avenuesgroup.org.uk

Web address: https://www.avenuesgroup.org.uk/

Twitter: @avenuesgroup

Start and end dates: March 2018 – March 2019

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Title of project: LD Champion training

Lead organisation: Support for Living, part of Certitude Support

Aims and objectives:  The main aim is to train staff, families and volunteers in Information and Advice Services to support people to gain an understanding of:

  • LD physical and mental health inequalities
  • Reasonable adjustments and how to implement these to improve access
  • Deprivation of Liberty Safeguards (DoLS), the Mental Capacity Act (MCA) and how these apply to health services

The KD Health Champions Training will cover

Health Inequalities and the Confidential Enquiry

Learning Outcomes:

  • Become aware of LD health inequalities and what these are
  • How these are preventable
  • How to recognise early signs
  • How to support people to access appropriate health services to receive timely and effective treatment

Reasonable Adjustments Legislation and Case Studies

Learning Outcomes:

  • Understand health services’ responsibilities under the Equality Act 2010
  • What reasonable adjustments are
  • How to implement these within their own services
  • How to encourage health service providers they interact with to implement reasonable adjustments

DoLs, the MCA and how these Relate to HealthCare

Learning Outcomes:

  • What DoLS are and their relation to the MCA
  • How to recognise when these are being used in health services
  • What the legal process for obtaining them is
  • How to challenge the use of DoLS when needed

Health Action Plans (HAPs)

Learning Outcomes:

  • What HAPs are
  • How to ensure people receive high-quality HAPs
  • How to challenge low-quality HAPs or poor delivery

In-depth Autism Awareness

Learning Outcomes:

  • How to recognise Autistic Spectrum Disorder symptoms
  • How autism can affect people and their communication and sensory needs
  • What adjustments can be made to better support people with autism
  • How autism overlaps and differs from LDs

Project lead: Marianne Selby-Boothroyd – Director of Development

Email contacts: MSelby-Boothroyd@certitude.org.uk

Web address: http://www.certitude.org.uk/

Twitter: @Certitude

Start and end date: June 2018 – June 2019

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Title of project: Working with children and young people with intellectual disabilities and their families, and the broad children and young people workforce that supports, to build an evidence base of education and training needs

Lead organisation: The Council for Disabled Children (part of the National Children’s Bureau)

Aims and objectives: CDC will work with children and young people with ID, their families, and the broad CYP workforce supporting them to build an evidence base of the education and training needs of carers, volunteers Pas and practitioners across social care, education and health.

CDC will analyse the insights and information from the workforce, CYP and their families to develop 2 lined reports that share the analysis and evidence from the events as well as recommendations. CDC will also build an external dissemination strategy to include journal publication, presenting at an external conference and hosting a webinar.

Project lead: Caroline Bennett –Assistant Director – South West London Health and Care Partnership

Email address: CBennett@ncb.org.uk

Web address: https://councilfordisabledchildren.org.uk/

Twitter feed: @CDC_tweets

Start and end dates: July 2018 – November 2018

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DEF

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Title of pilot project: Learning Disability Reasonable Adjustments and Mental Capacity Act Workshops

Lead organisation: East Kent Hospital University NHS Foundation Trust (EKHUFT)

Aims and objectives: This project is a collaboration between East Kent Hospitals University NHS Foundation Trust and the Kent, Surrey & Sussex Learning Disability Community of Practice. The workshops are designed for non learning disability specialist healthcare professionals across the whole system to gain an understanding of the national and local evidence base relating to access to health care and health inequalities. The workshops will support participants to reflect upon their care environment, pathways and delivery. They will gain a personal perspective on learning disabilities from experts by experience, and a working understanding of “reasonable adjustments”.

Project lead: Rags Subramaniam – Director Services and Medical Education Manager, EKHUFT

Email contact: ragssubramaniam@nhs.net

Web address: www.ekhuft.nhs.uk & www.ldcop.org.uk

Twitter: @EKHUFT & @kssldcop

Start & end dates:  December 2016 – March 2018 – PUBLICATION PENDING

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Title of pilot project: Employing People with Learning Disabilities

Lead organisation: East Kent Hospital University NHS Foundation Trust (EKHUFT)

Aims and objectives: This project builds on work already undertaken at EKHUFT, as well as the Five Year Forward Report recommending that NHS organisations employ more people with learning disabilities. The project aims to conduct a 5 year Bright Futures evaluation review report including outcome measures. Human Resource expertise will then be used to identify and care new roles specifically for people with learning disabilities, and then liaising directly with external organisations who can provide support in filling these roles.

Project lead: Twyla Mart – Resourcing Manager, EKHUFT

Email contact: twyla.mart@nhs.net

Web address: www.ekhuft.nhs.uk

Twitter: @EKHUFT

Start & end dates:  July 2016 – December 2017 – PUBLICATION PENDING

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GHI 

Title of pilot project: Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals – a Research and Training Project

Lead organisation: The Institute of Health Visiting

Aims and objectives:

  • To develop a training programme to improve the process of delivering different news to mothers to be and their families
  • To conduct an evaluation of the training intervention to assess acceptability, feasibility, and optimal design for future roll out of the intervention.

Specific objectives are:

  • To describe and explain the lived experience of receiving different news from a health professional.
  • To describe and explain the lived experience of providing different news to families by health care professionals.
  • To identify training needs for healthcare professionals who deliver different news.
  • To develop an intervention manual to enable delivery of training to healthcare professionals.
  • To pilot the intervention and assess the feasibility and acceptability of providing the intervention.

Project lead: Dr Esther Mugweni – Research Lead

Email contact: esther.mugweni@ihv.org.uk

Web address: https://ihv.org.uk/

Twitter: @ihealthvisiting

Start & end dates:  April 2017 – April 2018

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The Huntercombe Group

Title of pilot project: A Recovery College – the Collaborative Development, Recruitment and Provision of Training of Peers Tutors

Lead organisation: The Huntercombe Group (Cedar House Hospital)

Aims and objectives: The CQUIN requirement for a Recovery College requires the collaboration of clinicians, with those with lived experience of mental health issues, in the development of the college to ensure that patient centred care is central at all stages of the development of the college.

The aims and learning  objectives are:

Aim 1:

  • To work collaboratively with lived experience consultants to develop a college curriculum which marries the evidence base in this area of recovery, lived experience and clinician input.

Learning Objectives:

  • Develop a strategic business plan for the inception of the Recovery College.
  • Ensure collaboration between those with lived experience of mental health issues and clinicians, in order that a patient centred approach is central to each stage of the planning process.

Aim 2:

  • To provide knowledge and skills around training development and delivery in the context of recovery education.

Learning Objectives:

  • Experienced and reflected on the theory and process of how adults learn
  • Considered how our learning styles impact on training delivery
  • Explored how to create a positive learning environment
  • Practised designing learning aims and objectives for a course
  • Practised designing a training structure and plan
  • Identified challenges, benefits and explored modelling equality in the co-production/ co‐training relationship
  • Developed strategies on how to manages challenges that can occur in
  • training environment
  • Prepared and delivered a micro teaching session and received structured support

Project lead: Susan Hart – Head of Education and Therapy

Email contact: Susan.hart@huntercombe.com

Web address: https://huntercombe.com/

Twitter: @huntercombethg

Start & end dates:  March 2017 – October 2018

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The Huntercombe Group

Title of pilot project: Enhancement of the Positive Behaviour Support culture within a secure hospital for people with LD and autism to improve patient outcomes and aid transitions into less restrictive environments

Lead organisation: The Huntercombe Group

Aims and objectives: 

  • To increase potency of existing PBS programme through further enriching knowledge and stills of PBS within hospital workforce
  • To develop a PBS course for experts by experience, to increase their contribution to PBS
  • To develop a PBS course for families and carers, to increase their contribution to PBS
  • To measure the effectiveness of programme implementation

The proposal is to set a minimum standard of training in PBS for the hospital staff team. This is currently in place for all frontline staff and will be expanded to all employees. Everyone employed will be required to complete the level of training which has been identified as appropriate for their role.

In addition to this, a PBS training programme for patients will be developed through the recovery college and with support from the British Institute of Learning Disabilities. The overall objective is to improve outcomes for patients and influence transitions into less restrictive environments.

Project lead:  Emma Harrison – Hospital Director

Email contact: emma.harrison@huntercombe.com

Web address: https://huntercombe.com/

Twitter: @huntercombethg

Start & end dates:  March 2018 – February 2019

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JKL 

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Title of pilot project: Implementation of the Anticipatory Care Calendar

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: This project aims to introduce and implement the Anticipatory Care Calendar to providers (both residential and support living) across the South Kent Coast CCG region. This catchment area is the most densely populated within the county and therefore offers the greatest opportunity to develop the project to its full potential.

The Anticipatory Care Calendar is a simple tool designed to improve daily health surveillance. It overcomes barriers that can prevent people with both learning disabilities and dementia accessing health services. It is designed to alert staff to health changes and prompts appropriate access to primary care.

Implementation of this project will include liaising with Academic Health Science Networks to provide train-the-trainer sessions to both providers and community nurses.

Project lead: Sue Marsden – Specialist Community Matron (Learning Disabilities)

Email contact: susie.marsden@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  April 2016 – May 2017 – PUBLICATION PENDING

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Title of pilot project: My Health Navigator – Establishing a Multi-Agency and Multi-Disciplinary Workforce Model and Competences

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: Evidence based practice has established that the safest and most effective personalised care can only be provided if a co-ordinated method is adopted. A suggested answer to this need for effective co-ordination in complex physical healthcare is a My Health Navigator role. This would be undertaken by a LD professional whose aim would be maximise co-ordinated and anticipatory care from a multi-professional and multi-agency perspective.

My Health Navigator approach will achieve:

  • Help create a better quality of life for people with learning disabilities
  • Reduce burden on A& E and inpatient services
  • Utilise health resources more and improve efficiency
  • Provide a stronger sense of security and better ability to self-manage health for people with learning disabilities
  • Increase and improve understanding on the navigation in the health and social care system
  • A positive response to CIPOLD for people within Kent
  • Establish My Health navigator model across specialist, universal, primary care and acute health services across Kent
  • Develop multi-agency and multi-organisation partnerships to reducing health inequalities (demonstrating using HEF and other frameworks)
  • Develop multi-agency and multi-organisation frameworks, care pathways for people with LD with priority needs – eg Dysphagia

This proposal supplements the My health navigator role by aiming to:

  • Facilitate involvement of experts (people with learning disabilities) who are employed by KCHFT working on the project to inform personalisation focus.
  • Establish workforce requirements across the health sector in delivering My Health Navigator
  • Provide training – through train the trainer sessions and E-Learning on My Health Navigation
  • Support unqualified/residential workforce through training (ELearning)
  • Provide Training for those undertaking who are peoples My Health Navigator (including chairing complex and challenging meetings)
  • Provide thematic analysis on workforce and issues
  • Support end of life care and transition

Project lead: Matt Dodwell  – Head of Service – Learning Disabilities

Email contact: M.Dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  April 2017 – March 2018 – PUBLICATION PENDING

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Title of pilot project: Supporting People with Learning Disabilities at End of Life: A Training Programme to Increase Staff Skills to Enable People to Meet Their Wishes at End of Life

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: This project involves education in end of life care. This project will help improve the knowledge within Pilgrims Hospice, Kent, of people with a learning disability. In return, Pilgrims Hospice will be involved in the skills development of nurses, therapist and support staff providing care to people with a learning disability.

Learning outcomes, through a series of two day workshops include:

  • Staff will have increased knowledge with reference to current guidance in evidence based patient care for someone approaching end of life
  • Staff will have examined what is important for individuals,  carers, friends & family at end of life
  • Staff will have considered practical ways to improve comfort and dignity at end of life
  • Staff will have developed improved confidence to communicate any changes in condition to relevant teams and support services
  • A more developed understanding of the importance of multidisciplinary working at end of life to deliver person centred care
  • Increased knowledge by staff of who to refer to when individual may have symptoms at end of life and understanding use of key assessment tools both generic and specialised for people with a learning disability.
  • Increased awareness of National policy, including NICE guidance, Ambitions for end of life.

Project lead: Matt Dodwell  – Head of Service – Learning Disabilities

Email contact: M.Dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  March 2017 – April 2018

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Title of pilot project: Health Equalities Framework Intelligence Review

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives: This project aims to test the reliability of the Health Equalities Framework and analyse assessments based upon initial presentation through a series of systematic auditing to establish a baseline of health needs for the learning disability population in Kent over a 12 month period.

Taking a multidisciplinary approach, it is hoped that this project will result in a better understanding of the current and future needs of people with learning disabilities in Kent, which will lead to the planning and development of a class leading workforce.

Project lead: Matt Dodwell  – Head of Service – Learning Disabilities

Email contact: M.Dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  April 2016 – May 2017 PUBLICATION PENDING

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Title of pilot project: Workforce Competencies in Supporting PWLD and Forensic Histories

Lead organisation: Kent Community Health NHS Foundation Trust

Aims and objectives:

The project aims to:

  • Provide within Kent a universal level of understanding, skill and competency for all professional staff who may come into contact with people with learning disabilities and forensic histories
  • Develop and deliver a competency framework for practitioners who work regularly with people with a learning disability
  • Provide an e-learning package for care staff working with people with LD and forensic histories
  • Provide a practice based improvement framework for commissioners
  • Describe employment and engagement opportunities and clinical pathway for people with LD and forensic histories in Kent

The project is designed to be rolled out across London, Kent Surrey and Sussex.

The training will focus predominantly on the adult learning disability population, however, the course provides transferable skills to work with other groups such as CYP and/or Autistic Spectrum Condition client groups.

The project will also examine PBS model and its impact in working with people with forensic histories. This will be taken an analytical approach and will be more clearly defined as the project develops.

Project lead: Matt Dodwell  – Head of Service – Learning Disabilities

Email contact: M.Dodwell@nhs.net

Web address: https://www.kentcht.nhs.uk/

Twitter: @NHSKentCHFT

Start & end dates:  June 2018 – June 2019

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Title of Project: Dietary Approaches for Metabolic Syndrome, Obesity and improved Nutrition in people with a learning disability: the DAMSON project

Lead Organisation: Faculty of Health, Social Care and Education at Kingston University and St George’s, University of London

Aims and objectives: Children with a learning disability are more likely to be obese at ages five (Odds Ratio compared to children without a learning disability 1.32), seven (O.R. 1.39) and eleven (O.R. 1.68) with the trend of increasing obesity with age expected to continue into adolescence and adulthood. Dietary interventions using multi-tiered approaches have been shown as more effective to promote healthy eating habits in children. In response to this, staff from a variety of settings and from a range of disciplines will be invited to training days so that multi-disciplinary team learning can take place (aimed at both qualified and support staff who are interested in supporting service users with management of a healthy diet to improve health and wellbeing).

The educational content will be delivered through a mixture of taught material and supportive literature for parents and caregivers, focusing on a nudge approach through availability / exposure, reinforcement, modelling and small environmental changes. As well as DVDs and easy use cookbooks that will support people with a learning disability to prepare nutritious meals and snacks. Staff will also be taught how to use games and gardening to increase knowledge of healthy eating and repeated exposure and familiarity to a variety of vegetables with resources for these provided within the educational pack.

This will promote variety in dietary choices as well as use of moderation for calorie dense foods. DVDs and cookbooks will encourage familiarity to a range of fruit and vegetables to encourage consumption as well as positive role modelling by the person cooking the meals / snacks. The taught materials will highlight the benefits of reinforcement and role modelling during the cookery sessions.

The cookbooks and DVD will be designed to support people with a learning disability who may not be able to read to gain knowledge and skills in preparing food and in making educated choices about healthy eating.

The learning outcomes are increased knowledge around healthy eating and the enjoyment that can be gained by staff and individuals with a learning disability from cooking healthy meals / snacks.

Project lead: Lynette Harper – Senior Lecturer LD Nursing

Email contact: Lynette.Harper@sgul.kingston.ac.uk

Web address: https://www.kingston.ac.uk/

Twitter feed: @KingstonUni

Start & end dates: June  2018 – June  2019

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MNO 

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Title of pilot project: Picture Exchange Communication System Training

Lead organisation: Optima Care Ltd

Aims and objectives: Level 1 (Basic) Picture Exchange Communication System Training is being provided for staff. The course will enable staff to learn how to implement the six phases of PECS. Participants will have an understanding of how to implement PECS with individuals with autism, related developmental disabilities, and/or limited communication skills. The staff will then be able to become “PECS Champions” coaching and mentoring other staff in what good communication practice is and being responsible for the implementation of the system within their service.

Project lead: Christina Harrison – Training Manager

Email contact: Christina.Harrison@optimacare.co.uk

Web address: www.optimacare.co.uk/

Twitter: @shineoptimacare

Start & end dates:  June 2016 – June 2017 – PUBLICATION PENDING

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RQRS 

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Title of pilot project: Springwell  – Supporting People with Learning Disabilities and Complex Needs to have a Voice in their Care Planning Process

Lead organisation: Sussex Partnership NHS Foundation trust

Aims and objectives: Springwell is looking to double the number of people with learning disabilities (PWLD) and complex needs playing an active role in their Sussex Partnership NHS Foundation Trust (SPFT) care by July 2017. This project aims to develop and pilot:

  • a new co-produced referral system process that enables people to better manage and engage in the planning of their healthcare
  • standards about engagement and shared decision making for professionals and service users
  • staff training programmes for SPFT and voluntary sector / private organisations that will give them the understanding of how clients want to be engaged in their care plans.

There will be a training programme for staff in SPFT’s mental health and forensic services, improving the skills of staff in non-LD services in supporting PWLD to play an active part in their care. There will also be a training programme for staff in SPFT’s voluntary sector/private partners, improving the skills of all agencies involved in PWLD’s care in supporting PWLD to play an active part in their care. Both training programme will be co-produced by PWLD.

Project lead: Rachael Duke – Head of Charity

Email contact: Rachael.Duke@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  March 2016 – December 2017 – PUBLICATION PENDING

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Title of pilot project: Positive Behaviour Support Training

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: Currently within SPFT there is a small core group of people with high levels of competency in relation to these skills, notably Clinical Psychologists and behavioural practitioners. A number of in-house workshops have been delivered to introduce the basics of PBS and these identified a new for more systematic and skill based training for all staff.

This project will provide 2 day multi professional training for all staff involved with working with clients who display challenging behaviour. At the end of this, they will complete a client based work book which will be assessed by the trainers. All staff will also be offered the opportunity for additional basic competency training.

Staff who have a specific focus in their job plan on working with people with challenging behaviour will then undertake further training, including attendance at PBS workshop and case discussion forums, as well as formal e-learning.

Project lead: Jane Edmonds – Professional Lead for Learning Disability Service

Email contact: Jane.Edmonds@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  April 2016 – November 2017 – PUBLICATION PENDING

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Title of pilot project: Delivering Positive and Proactive Care: a CPD Programme for Managers and Leaders

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: The project will design, deliver and evaluate a training programme for managers of services which support individuals with complex needs and behaviour that challenges, given these managers are responsible for the overall quality of the service and supervision of staff. Building the Right Support (2015) clearly identifies the need for partnership working to train the local workforce within and beyond their organisations.

The programme will comprise of the development of 4 x one day workshops one month apart with a 3 monthly follow up workshop.  This programme will be at an enhanced level to complement existing training related to generic leadership competencies.  The focus will be on the specialist area of developing better quality care for people with behaviour that may challenge.

Project lead: Jane Edmonds – Professional Lead for Learning Disability Service

Email contact: Jane.Edmonds@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  February 2018 – February 2018

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Title of pilot project: CHAT – Carers Health and Training

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: Aims of the Project are that NHS staff will Co-produce a plan with carers to identify:

  • Carer resilience as key workforce partners develop peer learning/ delivery models – co-educators where possible
  • Choice and having a say in the design of specialist health programmes delivered by clinical staff
  • What is available in the community in supporting the people they care for to be well
  • Crisis – what does it look like for carers and how this fits with the developing local Transforming Care plans around crisis prevention and planning
  • Identify when and what carers and families need for the future including integrated health and training programmes to include options such as a dedicated Carer Support Worker role working alongside community teams
  • Identify and trial the nature of any future or additional 1:1 crisis support for carers, care support needs, or joint working with NHS Specialist Team for persons with a learning disability or autistic spectrum conditions and their carers

This will then feed into a bespoke programme of learning, co-designed with local learning disability carer groups across West Sussex and local NHS LD clinicians. Carers Support West Sussex Specialist Team have strong working relationships with health professionals in Health and Social Care Commissioned Service for people with a learning disability and autistic spectrum conditions, and with voluntary organisations.

Project lead: Viki Baker – Director Learning Disability Services

Email contact: viki.baker@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates:  May 2017 – 2018 to be agreed

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Title of pilot project:  Developing Staff Skills to work effectively with Families to Support the Delivery of the Transforming Care Agenda in Sussex

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: 

  • SPFT will support practitioners’ ability to understand and work effectively with families in order to establish working relationships which are vital for ensuring the best possible health and social care for PWID This will be undertaken via “Learn with Us”, a specialist training package
  • From this, a LD induction programme session will be designed to be delivered 4 times a year to all multi-disciplinary health professions and social workers who work with families

Outcomes:

For participants to:

  • Understand the importance of developing a good relationship with families
  • Understand the importance of a families experiences, perspectives and narratives and knowing how these influence their relationships with services
  • Understand the factors that contribute to the development of a good relationship between families and support services
  • Understand the factors that contribute to problematic relationships between families and services
  • Development awareness of the skills required to work more effectively with services

Project lead: Esther Wilcox – Clinical Psychologist

Email contact: esther.wilcox@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates: March 2018 – April 2019

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Title of  pilot project:  Surrey PBS Coaches

Lead organisation: Surrey County Council

Aims and objectives: 

  • To increase the skills of providers and the health and social care workforce across the whole system of services
  • This will reduce pressure on A and E and the police who often have to respond when providers can not safely manage a situation, and will reduce the number of inappropriate admissions to specialist Assessment and Treatment or Hospital settings, in line with the aims of Transforming Care
  • Developing jointly agreed training materials and delivery methods and piloting a local PBS training consortium
  • This collaborative approach will help maintain a local workforce that can support people whose behavior can challenge services in their community
  • It is hoped that this will lead to better support in the community and fewer hospital admissions

Project lead: Tom Moore – Commissioning Manager – East Surrey (County Autism Lead) Surrey County Council Adult Social Care

Email contact: Thomas.moore@surreycc.gov.uk

Web address: https://www.surreycc.gov.uk/

Twitter: @SurreyCouncil

Start & end dates: March 2018 – February 2019

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Title of  pilot project: Strengthening Good Practice in Supporting People with Learning Disabilities and Mental Health Problems

Lead organisation: Sussex Partnership NHS Foundation Trust

Aims and objectives: 

A key part of the mental health pathway is training in expected knowledge, good practice around delivery a good quality evidence based mental health pathway, how to operationalize and ensure good working within a multidisciplinary specialist team and wider service structures including adult mental health services. This project builds on an existing multiagency partnership and as such will have multi-disciplinary input from across health and social care:

  • Tier 1 Training – generic basic level training that is open to anyone who may be supporting anyone with a learning disability and mental health problems. This includes all LD SPFT staff, staff in other areas of the service, social care staff, health facilitation nurses and carers.
  • Toer 2 Training – targeted at mental health professionals within the LD services and serving as a way of upskilling and shaping and developing good practice through a series of masterclasses

Outcomes

Tier 1 Training:

  • Increased early identification and assessment of people with mental health problems
  • Improved implementation of mental health pathway and menu of intervention
  • More effective working with service users and families in a more person-centred collaborative approach
  • Reduced use of un-necessary medication
  • Improved and strengthened community response to people presenting with mental health problems
  • Clinicians feeling more competent and improved skills and knowledge around core mental health conditions and how to work together as a service

Project lead: Karen Fuchs – Consultant Clinical Psychologist

Email contact: Karin.Fuchs@sussexpartnership.nhs.uk

Web address: https://www.sussexpartnership.nhs.uk/

Twitter: @withoutstigma

Start & end dates: June 2018 – June 2019

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NHS

Title of Project: South West London Transforming Care Partnership PBS Implementation Plan

Lead organisation: South West London Health and Care Partnership (Wandsworth CCG)

Aims and objectives: The main aim of the project is to take a standardised approach to PBS across SWL, though implementation of a PBS standard contract and service specification. This pilot project will test whether a standardised approach improves outcomes for people. If successful, this model and approach will be rolled out further across SWL.

Training and coaching will be delivered to multi professional groups including psychologists, behavioural specialists, care workers, managers and contract officers via a train the trainer approach to help ensure sustainability and further spread of training across SWL. E learning and other support packages will also be used.

The training, which will enable ongoing evaluation to help understand its impact, has the following learning outcomes:

  • Understanding reasons for challenging behaviour
  • Identifying strategies to prevent and reduce challenging behaviour
  • Identifying where and how to access ongoing support
  • Explanation of practical communication strategies
  • Understanding of how to improve partnership working between carers, families and professionals

Project lead: Annabel Appleby –Assistant Director – South West London Health and Care Partnership

Email contact: annabel.appleby@swlondon.nhs.uk

Web address: https://www.swlondon.nhs.uk/

Twitter: @SWLNHS

Start and end date: June 2018 – June 2019

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Real-Insight-Logo-V5.11 Hart Consultancy

Title of project: To Increase Insight and Enhance the Quality of Care Provision for Individuals with Intellectual Disabilities, Through Targeted Training Directed to Support Organisations and Carers to Achieve their Key Functions

Lead organisation: Real Insight and Hart Consultancy

Aims and objectives: 

There are 2 phases to this project:

Phase 1 – Scoping Study via a Structure Survey to scope the demand for organisation and training support, from the following sectors who provide services to individuals with intellectual disabilities within the community:

  • Statutory services: (NHS, Social Care, Education and early years)
  • Independent sector: (Non-profit making services who have contractual arrangements with NHS CCG)
  • Private sector: (Profit making services, such as domiciliary care and out of hours GP services)
  • Charitable sector: Non-profit making, social and philanthropic groups (such as self-help and community groups).

Phase 2 –  Aim 1 – To increase insight, and enhance quality of care provision, for those whose work brings them into contact with individuals with intellectual disabilities (such as health professionals, receptionists, judicial staff), through the provision of training around recovery orientated practices.

Following this a training programme will be set up for CCG Services to meet the education and training demands of the professionals within the following CCG areas:

  • Elective hospital care
  • Rehabilitation care
  • Urgent and emergency care
  • Community health services
  • Mental health and learning services

The training will have the following objectives:

  • To provide basic introductory training on what is an intellectual disability.
  • To provide basic training regarding prevalence of both physical and mental health conditions associated with intellectual disabilities.
  • To look at national and local policy and drivers around promoting independent functioning for individuals with intellectual disabilities.
  • To look at evidence based recovery principles around involving individuals with intellectual disabilities, their carers and staff.
  • To look at co-production as a means of empowering individuals with intellectual disabilities.

Aim 2 – To increase carers, of individuals with intellectual disabilities’, understanding of the care system, systems of meaningful involvement, and how to enhance the efficacy of their role, through the delivery of training on recovery orientated practices.

A training programme will be set up specifically for the same CCG services as before to meet the demands of the carers accessing these services.

The training will have the following learning objectives:

  • To provide basic introductory training on what is an intellectual disability
  • To provide basic training regarding prevalence of both physical and mental health conditions associated with intellectual disabilities
  • To look at national and local policy and drivers around promoting independent functioning for individuals with intellectual disabilities
  • To look at evidence based recovery principles around involving individuals with intellectual disabilities, their carers and staff
  • To look at co-production as a means of empowering individual’s with intellectual disabilities.
  • To look at their role as carer’s, and how they can work collaboratively with those they care for in order to reflect their fundamental needs
  • To look at how they can provide care and advocacy for individuals with an intellectual disability, when collaborating with organisations whose work bring them into contact with individual’s with intellectual disabilities
  • To enable carer’s understanding of the organisational structures and systems that can impact on social inclusion and recovery, for individuals with an intellectual disability

Project lead: Susan Hart – Hart Consultancy Director

Email contact: susan@hartconsultancy.org.uk

Web address: https://www.real-insight.org/

Twitter feed: @NashMomori

Start and end dates: March 2018 – March 2019

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Title of project: Reasonable Adjusted: Meeting the Needs of PWLD in Mental Health Settings

Lead organisation: South London and Maudsley NHS Foundation Trust – Mental Health in Learning Disabilities Service and Estia Centre

Aims and objectives: The main aim is developing an already existing training to enhance the knowledge, skills and attitudes that a range of healthcare professionals require to provide effective care and treatment to PWID. This is done by using a blended approach that includes co-design and co-delivery by individuals with ID. Existing work will be built on by:

  • Developing a resource /good practice guide that can be used by local champions to train their colleagues and share their learning
  • Increase the contributions of people with a learning disability and / or family and carers to enable the resource to be fully co-produced
  • Disseminating the resource feely to other mental health service and clinicians to improve the care and treatment of this population.

Course Aims:

  • Increase knowledge, skills and confidence in providing mental health care to PWLD

Course Objectives:

  • Increase awareness of the rights of PWLD and the responsibilities of health and social care professionals
  • Explore concerns relating to working with PWLD
  • Gain awareness of national policy
  • Develop skills in engagement techniques
  • Recognise how mental health problems present in this group
  • Learn how to adapt mental assessments for PWLD
  • Explore how interventions can be adapted

Project Lead: Karina Marshall-Tate – RNLD, Head of Education and Training Estia Centre

Email contact: Karina.Marshall-Tate@slam.nhs.uk

Web address: http://www.slam.nhs.uk/about-us/clinical-academic-groups/behavioural-and-developmental/estia

Twitter feed: @MaudsleyNHS

Start and end dates: June 2018 – December 2019

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Title of project: Evaluation and identification of workforce needs to support people with ID across Kent Surrey and Sussex

Lead organisation: Surrey and Borders Partnership NHS Foundation Trust

Aims and objectives: The project will be separated into different phases:

Phase 1: Scoping and identification of issues and solutions

It will be important to evaluate and establish from undergraduate level through to Consultant appointment the training pathways that exist. For ex ample the GMC defines university curricula but it is then the responsibility for each university to interpret and train medical students. The level of input regarding LD and Autism will vary significantly from the different medical schools currently feeding into the KSS region. Further the exposure and training offered in LD to doctors in training, Foundation years, core training in different area through to higher specialist training will differ. It will be vital to establish what is currently being delivered and how this has an impact on future careers. Different Royal colleges have attempted to address this but the extent to which this has been implemented across KSS is unclear.

A mixture of methods from direct interview with individuals in institutions delivering these opportunities alongside curriculum reviews will be undertaken. This will be taken alongside interviews with those people who have trained and chosen to work in ID to understand better the nature of the choices and educational opportunities that led to a career in LD by doctors. The barriers will also be sought and the challenges faced by practicing physicians to understand the training needs will be established. These interviews will also be used to map the pathways available to KSS in terms of what opportunities currently exist for training and at what levels.

Finally it will be important to understand based on Royal College of Psychiatrist/ Royal College of GP documentation as well as discussion with current practitioners in KSS the different roles and models of need for Doctors in LD. Historical approaches are changing and it will be important to evaluate the current needs before recommendations can be made.

This phase will take 6 months.

Phase 2: Conference of peers in Surrey

Current professionals, directors of ID services, representatives of ID service users and ID service users themselves will be invited to training and development days to look at consolidating the finishing of the scoping exercise. Initial findings will be presented as well as questions to help formulate a broader consensus. This may also include presentation from non-medical practitioners to define how these roles are offering alternatives to medical workforce and also where specific needs for doctors remain going forward in the future in KSS.

Phase 3: modelling work based on conference and workshops, evaluation and writeup of report with proposals.

Based on the data collected a thematic analysis of the findings will be developed in order to establish the training gaps in KSS for doctors as well as making proposals for future training needs in KSS in order to deliver the workforce of the future in the LD medical profession.

Phase 3 will be completed the final 6 months

Project lead: Raja Mukherjee – Consultant Psychiatrist, Foetal Alcohol Spectrum Disorder Service

Email contact: Raja.Mukherjee@sabp.nhs.uk

Web address: https://www.sabp.nhs.uk/

Twitter feed: @rajamukherjee10

Start & end date: June  2018 – August 2019

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Title of project: Learning In To Action: Outcomes for Life

Lead organisation: SeeAbility

Aims and objectives: 

Programme overview:

A six week, modular training programme will be implemented for all support team members who are in direct contact with people with intellectual disabilities and autism in London, Kent, Surrey, and Sussex (these include LD Nurses, support workers, senior support workers, deputy managers, managers, activities co-ordinators).

Learning Outcomes:

The learners will be able to enhance the quality of life of people with intellectual disabilities and autism by supporting them to identify individual goals and then using evidenced based methodology for skills teaching. These skills will be of added valueto anyone being supported and will enable evidenced based, outcomes focused support enhancing health and quality of life.

Drawing heavily on the PBS Competencies Framework this will be a training programme that provides multi-disciplinary input to enable people to achieve their aims. Individual aims are developed by people supported and their families. It is a modular programme that will teach skills teaching in order to better support people who have autism, intellectual disabilities, sensory needs, and display behaviours that can challenge.

Update:

Project lead: Lisa Hopkins – Chief Executive

Email contact: L.Hopkins@seeability.org

Web address: https://www.seeability.org/

Twitter feed: @SeeAbility

Start & end date: June 2018 –August 2020

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Title of project: Longitudinal evaluation of “Meeting the Health Needs of People with Learning Disabilities” multi-professional simulation training

Lead organisation: Maudsley Simulation

Aims and objectives: To longitudinally evaluate the use of simulation training for healthcare professionals working with people with intellectual disabilities.

This 6-month project will comprise three phases:

1) training scoping and literature searching;

2) data collection and analysis;

3) reporting and dissemination.

Project lead: James Pathan – Service Lead

Email contact: James.pathan@slam.nhs.uk

Web address: https://www.maudsleysimulation.com/

Twitter feed: @MaudsleySim

Start & end dates: March 2018 –December 2018

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Image result for Your Healthcare CIC logo

Title of project: Experiences of transition for individuals in emerging adulthood who have been diagnosed with a neurodevelopmental condition. A phenomenological study

Lead organisation: Your Healthcare CIC

Aims and objectives: This is an exploratory project in an area that is not yet well researched. The project is focused around transition from children’s to adults’ services., which has been identified as a service development area need within the boroughs The transition for individuals from children’s services to adult services was identified as a service development area within the Royal boroughs of Richmond and Kingston.

The objectives of the research project are:

  • Undertake up to 30 Interviews with service users (focusing on lived experiences)
  • Hold meetings for dissemination, and attend conferences to disseminate
  • Provide the basis for informing further research and inform other community based projects, development, and further education of the workforce, to provide better care and input for those going through transition in the future

Once completed, the recommendations from the research will also seek to inform the development of workshops and training to help inform the practise of professionals within the organisation as well as the wider Royal Boroughs of Richmond and Kingston. Capturing the voice of service users would enable others to provide better care and input for those going through transition in the future.

Project lead: Ms Casey Bradford – Clinical Psychologist

Email contact: casey.bradford@yourhealthcare.org

Web address: http://www.yourhealthcare.org/ 

Twitter feed:  @_yourhealthcare

Start & end date: June  2018 –December  2019

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