This page only holds details of pilot projects currently in progress, click here to find a completed projects with reports, tools and materials. This page is indexed by lead organisation use the alphabet links to jump to that section of this page.
List of project currently in progress or pending publication
Click on project title to find out more information
- Positive Behaviour Support Workforce Training (Avenues Group)
- Working with children and young people with intellectual disabilities and their families, and the broad children and young people workforce that supports, to build an evidence base of education and training needs (The Council for Disabled Children part of the National Children’s Bureau)
- A Recovery College – the Collaborative Development, Recruitment and Provision of Training of Peers Tutors (The Huntercombe Group, Cedar House Hospital)
- Enhancement of the Positive Behaviour Support culture within a secure hospital for people with LD and autism to improve patient outcomes and aid transitions into less restrictive environments (the Huntercombe Group)
- My Health Navigator – Establishing a Multi-Agency and Multi-Disciplinary Workforce Model and Competences (Kent Community Health NHS FT)
- Workforce Competencies in Supporting PWLD and Forensic Histories (Kent Community Health NHS FT)
- Positive Behaviour Support Training (Sussex Partnership NHS FT)
- Delivering Positive and Proactive Care: a CPD Programme for Managers and Leaders (Sussex Partnership NHS FT)
- CHAT – Carers Health and Training (Sussex Partnership NHS FT)
- Developing Staff Skills to work effectively with Families to Support the Delivery of the Transforming Care Agenda in Sussex (Sussex Partnership NHS FT)
- Surrey PBS Coaches (Surrey Council)
- Strengthening Good Practice in Supporting People with Learning Disabilities and Mental Health Problems (Sussex Partnership NHS FT)
- South West London Transforming Care Partnership PBS Implementation Plan (South West London Health and Care Partnership, Wandsworth CCG)
- Reasonable Adjusted: Meeting the Needs of PWLD in Mental Health Settings (South London and Maudsley NHS Foundation Trust – Mental Health in Learning Disabilities Service and Estia Centre)
- Evaluation and identification of workforce needs to support people with ID across Kent Surrey and Sussex (Surrey and Borders Partnership NHS Foundation Trust)
- Learning In To Action: Outcomes for Life (See Ability)
- Experiences of transition for individuals in emerging adulthood who have been diagnosed with a neurodevelopmental condition. A phenomenological study ( Your Healthcare CIC )
- Exploring & Overcoming Workforce Barriers that may Impact on the Uptake of the Learning Disability Health Check Scheme (National Development Team for Inclusion (NDTi) – working in partnership with Learning Disability England, Skills for Care, the Voluntary Organisations Disability Group)
- Supporting the Development of the Non-specialist Learning Disability Workforce to Achieve Better Outcomes when Working with people who have a Learning Disability (National Development Team for Inclusion)
- Supporting Maternity Services to more Effectively Support Women and Families who have Learning Disabilities (The International Care Ethics Observatory, Surrey University)
- Delivering Different News 2 – Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals
- Supporting the accessing of audiology services for people that have learning disabilities and autistic people
Title of pilot project: Positive Behaviour Support Workforce Training
Lead organisation: The Avenues Trust Group
Aims and objectives: Avenues is working towards being able to position itself as a mini academy for PBS. This project is aimed to improve care particularly for people with complex needs including behaviour that challenges. The training is for Avenues staff, including support workers, practice leaders and development leads as well as for families, carers and advocates. The programme is aimed at building on the PBS and Active Support training programmes already in place.
The training programme is also to be offered to smaller providers across Kent, Surrey and Sussex in order to help sustaining this work in the region. A conference is planned where the results of this work are to be disseminated.
In addition to the Challenging Behaviour Foundation Programme which will be tutor led, some staff will undertake a BTEC Award in PBS via e learning. A Practice Development Lead will also undertake the MA in Intellectual and Development Disabilities.
Project lead: Shane Carroll – Group OD Manager
Email contact: shane.carroll@avenuesgroup.org.uk
Web address: https://www.avenuesgroup.org.uk/
Twitter: @avenuesgroup
Title of project: Working with children and young people with intellectual disabilities and their families, and the broad children and young people workforce that supports, to build an evidence base of education and training needs
Lead organisation: The Council for Disabled Children (part of the National Children’s Bureau)
Aims and objectives: CDC will work with children and young people with ID, their families, and the broad CYP workforce supporting them to build an evidence base of the education and training needs of carers, volunteers Pas and practitioners across social care, education and health.
CDC will analyse the insights and information from the workforce, CYP and their families to develop 2 lined reports that share the analysis and evidence from the events as well as recommendations. CDC will also build an external dissemination strategy to include journal publication, presenting at an external conference and hosting a webinar.
Project lead: Caroline Bennett –Assistant Director – South West London Health and Care Partnership
Email address: CBennett@ncb.org.uk
Web address: https://councilfordisabledchildren.org.uk/
Twitter feed: @CDC_tweets
Title of pilot project: A Recovery College – the Collaborative Development, Recruitment and Provision of Training of Peers Tutors
Lead organisation: The Huntercombe Group (Cedar House Hospital)
Aims and objectives: The CQUIN requirement for a Recovery College requires the collaboration of clinicians, with those with lived experience of mental health issues, in the development of the college to ensure that patient centred care is central at all stages of the development of the college.
The aims and learning objectives are:
Aim 1:
- To work collaboratively with lived experience consultants to develop a college curriculum which marries the evidence base in this area of recovery, lived experience and clinician input.
Learning Objectives:
- Develop a strategic business plan for the inception of the Recovery College.
- Ensure collaboration between those with lived experience of mental health issues and clinicians, in order that a patient centred approach is central to each stage of the planning process.
Aim 2:
- To provide knowledge and skills around training development and delivery in the context of recovery education.
Learning Objectives:
- Experienced and reflected on the theory and process of how adults learn
- Considered how our learning styles impact on training delivery
- Explored how to create a positive learning environment
- Practised designing learning aims and objectives for a course
- Practised designing a training structure and plan
- Identified challenges, benefits and explored modelling equality in the co-production/ co‐training relationship
- Developed strategies on how to manages challenges that can occur in training environment
- Prepared and delivered a micro teaching session and received structured support
Project lead: Susan Hart – Head of Education and Therapy
Email contact: Susan.hart@huntercombe.com
Web address: https://huntercombe.com/
Twitter: @huntercombethg
Title of pilot project: Enhancement of the Positive Behaviour Support culture within a secure hospital for people with LD and autism to improve patient outcomes and aid transitions into less restrictive environments
Lead organisation: The Huntercombe Group
Aims and objectives:
- To increase potency of existing PBS programme through further enriching knowledge and stills of PBS within hospital workforce
- To develop a PBS course for experts by experience, to increase their contribution to PBS
- To develop a PBS course for families and carers, to increase their contribution to PBS
- To measure the effectiveness of programme implementation
The proposal is to set a minimum standard of training in PBS for the hospital staff team. This is currently in place for all frontline staff and will be expanded to all employees. Everyone employed will be required to complete the level of training which has been identified as appropriate for their role.
In addition to this, a PBS training programme for patients will be developed through the recovery college and with support from the British Institute of Learning Disabilities. The overall objective is to improve outcomes for patients and influence transitions into less restrictive environments.
Project lead: Emma Harrison – Hospital Director
Email contact: emma.harrison@huntercombe.com
Web address: https://huntercombe.com/
Twitter: @huntercombethg
Title of pilot project: My Health Navigator – Establishing a Multi-Agency and Multi-Disciplinary Workforce Model and Competences
Lead organisation: Kent Community Health NHS Foundation Trust
Aims and objectives: Evidence based practice has established that the safest and most effective personalised care can only be provided if a co-ordinated method is adopted. A suggested answer to this need for effective co-ordination in complex physical healthcare is a My Health Navigator role. This would be undertaken by a LD professional whose aim would be maximise co-ordinated and anticipatory care from a multi-professional and multi-agency perspective.
My Health Navigator approach will achieve:
- Help create a better quality of life for people with learning disabilities
- Reduce burden on A& E and inpatient services
- Utilise health resources more and improve efficiency
- Provide a stronger sense of security and better ability to self-manage health for people with learning disabilities
- Increase and improve understanding on the navigation in the health and social care system
- A positive response to CIPOLD for people within Kent
- Establish My Health navigator model across specialist, universal, primary care and acute health services across Kent
- Develop multi-agency and multi-organisation partnerships to reducing health inequalities (demonstrating using HEF and other frameworks)
- Develop multi-agency and multi-organisation frameworks, care pathways for people with LD with priority needs – eg Dysphagia
This proposal supplements the My health navigator role by aiming to:
- Facilitate involvement of experts (people with learning disabilities) who are employed by KCHFT working on the project to inform personalisation focus.
- Establish workforce requirements across the health sector in delivering My Health Navigator
- Provide training – through train the trainer sessions and E-Learning on My Health Navigation
- Support unqualified/residential workforce through training (ELearning)
- Provide Training for those undertaking who are peoples My Health Navigator (including chairing complex and challenging meetings)
- Provide thematic analysis on workforce and issues
- Support end of life care and transition
Project lead: Matt Dodwell – Head of Service – Learning Disabilities
Email contact: M.Dodwell@nhs.net
Web address: https://www.kentcht.nhs.uk/
Twitter: @NHSKentCHFT
Title of pilot project: Workforce Competencies in Supporting PWLD and Forensic Histories
Lead organisation: Kent Community Health NHS Foundation Trust
Aims and objectives:
The project aims to:
- Provide within Kent a universal level of understanding, skill and competency for all professional staff who may come into contact with people with learning disabilities and forensic histories
- Develop and deliver a competency framework for practitioners who work regularly with people with a learning disability
- Provide an e-learning package for care staff working with people with LD and forensic histories
- Provide a practice based improvement framework for commissioners
- Describe employment and engagement opportunities and clinical pathway for people with LD and forensic histories in Kent
The project is designed to be rolled out across London, Kent Surrey and Sussex.
The training will focus predominantly on the adult learning disability population, however, the course provides transferable skills to work with other groups such as CYP and/or Autistic Spectrum Condition client groups.
The project will also examine PBS model and its impact in working with people with forensic histories. This will be taken an analytical approach and will be more clearly defined as the project develops.
Project lead: Matt Dodwell – Head of Service – Learning Disabilities
Email contact: M.Dodwell@nhs.net
Web address: https://www.kentcht.nhs.uk/
Twitter: @NHSKentCHFT
Title of pilot project: Positive Behaviour Support Training
Lead organisation: Sussex Partnership NHS Foundation Trust
Aims and objectives: Currently within SPFT there is a small core group of people with high levels of competency in relation to these skills, notably Clinical Psychologists and behavioural practitioners. A number of in-house workshops have been delivered to introduce the basics of PBS and these identified a new for more systematic and skill based training for all staff.
This project will provide 2 day multi professional training for all staff involved with working with clients who display challenging behaviour. At the end of this, they will complete a client based work book which will be assessed by the trainers. All staff will also be offered the opportunity for additional basic competency training.
Staff who have a specific focus in their job plan on working with people with challenging behaviour will then undertake further training, including attendance at PBS workshop and case discussion forums, as well as formal e-learning.
Project lead: Jane Edmonds – Professional Lead for Learning Disability Service
Email contact: Jane.Edmonds@sussexpartnership.nhs.uk
Web address: https://www.sussexpartnership.nhs.uk/
Twitter: @withoutstigma
Title of pilot project: Delivering Positive and Proactive Care: a CPD Programme for Managers and Leaders
Lead organisation: Sussex Partnership NHS Foundation Trust
Aims and objectives: The project will design, deliver and evaluate a training programme for managers of services which support individuals with complex needs and behaviour that challenges, given these managers are responsible for the overall quality of the service and supervision of staff. Building the Right Support (2015) clearly identifies the need for partnership working to train the local workforce within and beyond their organisations.
The programme will comprise of the development of 4 x one day workshops one month apart with a 3 monthly follow up workshop. This programme will be at an enhanced level to complement existing training related to generic leadership competencies. The focus will be on the specialist area of developing better quality care for people with behaviour that may challenge.
Project lead: Jane Edmonds – Professional Lead for Learning Disability Service
Email contact: Jane.Edmonds@sussexpartnership.nhs.uk
Web address: https://www.sussexpartnership.nhs.uk/
Twitter: @withoutstigma
Title of pilot project: CHAT – Carers Health and Training
Lead organisation: Sussex Partnership NHS Foundation Trust
Aims and objectives: Aims of the Project are that NHS staff will Co-produce a plan with carers to identify:
- Carer resilience as key workforce partners develop peer learning/ delivery models – co-educators where possible
- Choice and having a say in the design of specialist health programmes delivered by clinical staff
- What is available in the community in supporting the people they care for to be well
- Crisis – what does it look like for carers and how this fits with the developing local Transforming Care plans around crisis prevention and planning
- Identify when and what carers and families need for the future including integrated health and training programmes to include options such as a dedicated Carer Support Worker role working alongside community teams
- Identify and trial the nature of any future or additional 1:1 crisis support for carers, care support needs, or joint working with NHS Specialist Team for persons with a learning disability or autistic spectrum conditions and their carers
This will then feed into a bespoke programme of learning, co-designed with local learning disability carer groups across West Sussex and local NHS LD clinicians. Carers Support West Sussex Specialist Team have strong working relationships with health professionals in Health and Social Care Commissioned Service for people with a learning disability and autistic spectrum conditions, and with voluntary organisations.
Project lead: Viki Baker – Director Learning Disability Services
Email contact: viki.baker@sussexpartnership.nhs.uk
Web address: https://www.sussexpartnership.nhs.uk/
Twitter: @withoutstigma
Title of pilot project: Developing Staff Skills to work effectively with Families to Support the Delivery of the Transforming Care Agenda in Sussex
Lead organisation: Sussex Partnership NHS Foundation Trust
Aims and objectives:
- SPFT will support practitioners’ ability to understand and work effectively with families in order to establish working relationships which are vital for ensuring the best possible health and social care for PWID This will be undertaken via “Learn with Us”, a specialist training package
- From this, a LD induction programme session will be designed to be delivered 4 times a year to all multi-disciplinary health professions and social workers who work with families
Outcomes:
For participants to:
- Understand the importance of developing a good relationship with families
- Understand the importance of a families experiences, perspectives and narratives and knowing how these influence their relationships with services
- Understand the factors that contribute to the development of a good relationship between families and support services
- Understand the factors that contribute to problematic relationships between families and services
- Development awareness of the skills required to work more effectively with services
Project lead: Esther Wilcox – Clinical Psychologist
Email contact: esther.wilcox@sussexpartnership.nhs.uk
Web address: https://www.sussexpartnership.nhs.uk/
Twitter: @withoutstigma
Title of pilot project: Surrey PBS Coaches
Lead organisation: Surrey County Council
Aims and objectives:
- To increase the skills of providers and the health and social care workforce across the whole system of services
- This will reduce pressure on A and E and the police who often have to respond when providers can not safely manage a situation, and will reduce the number of inappropriate admissions to specialist Assessment and Treatment or Hospital settings, in line with the aims of Transforming Care
- Developing jointly agreed training materials and delivery methods and piloting a local PBS training consortium
- This collaborative approach will help maintain a local workforce that can support people whose behavior can challenge services in their community
- It is hoped that this will lead to better support in the community and fewer hospital admissions
Project lead: Tom Moore – Commissioning Manager – East Surrey (County Autism Lead) Surrey County Council Adult Social Care
Email contact: Thomas.moore@surreycc.gov.uk
Web address: https://www.surreycc.gov.uk/
Twitter: @SurreyCouncil
Title of pilot project: Strengthening Good Practice in Supporting People with Learning Disabilities and Mental Health Problems
Lead organisation: Sussex Partnership NHS Foundation Trust
Aims and objectives:
A key part of the mental health pathway is training in expected knowledge, good practice around delivery a good quality evidence based mental health pathway, how to operationalize and ensure good working within a multidisciplinary specialist team and wider service structures including adult mental health services. This project builds on an existing multiagency partnership and as such will have multi-disciplinary input from across health and social care:
- Tier 1 Training – generic basic level training that is open to anyone who may be supporting anyone with a learning disability and mental health problems. This includes all LD SPFT staff, staff in other areas of the service, social care staff, health facilitation nurses and carers.
- Toer 2 Training – targeted at mental health professionals within the LD services and serving as a way of upskilling and shaping and developing good practice through a series of masterclasses
Outcomes
Tier 1 Training:
- Increased early identification and assessment of people with mental health problems
- Improved implementation of mental health pathway and menu of intervention
- More effective working with service users and families in a more person-centred collaborative approach
- Reduced use of un-necessary medication
- Improved and strengthened community response to people presenting with mental health problems
- Clinicians feeling more competent and improved skills and knowledge around core mental health conditions and how to work together as a service
Project lead: Karen Fuchs – Consultant Clinical Psychologist
Email contact: Karin.Fuchs@sussexpartnership.nhs.uk
Web address: https://www.sussexpartnership.nhs.uk/
Twitter: @withoutstigma
Title of Project: South West London Transforming Care Partnership PBS Implementation Plan
Lead organisation: South West London Health and Care Partnership (Wandsworth CCG)
Aims and objectives: The main aim of the project is to take a standardised approach to PBS across SWL, though implementation of a PBS standard contract and service specification. This pilot project will test whether a standardised approach improves outcomes for people. If successful, this model and approach will be rolled out further across SWL.
Training and coaching will be delivered to multi professional groups including psychologists, behavioural specialists, care workers, managers and contract officers via a train the trainer approach to help ensure sustainability and further spread of training across SWL. E learning and other support packages will also be used.
The training, which will enable ongoing evaluation to help understand its impact, has the following learning outcomes:
- Understanding reasons for challenging behaviour
- Identifying strategies to prevent and reduce challenging behaviour
- Identifying where and how to access ongoing support
- Explanation of practical communication strategies
- Understanding of how to improve partnership working between carers, families and professionals
Project lead: Annabel Appleby –Assistant Director – South West London Health and Care Partnership
Email contact: annabel.appleby@swlondon.nhs.uk
Web address: https://www.swlondon.nhs.uk/
Twitter: @SWLNHS
Title of project: Reasonable Adjusted: Meeting the Needs of PWLD in Mental Health Settings
Lead organisation: South London and Maudsley NHS Foundation Trust – Mental Health in Learning Disabilities Service and Estia Centre
Aims and objectives: The main aim is developing an already existing training to enhance the knowledge, skills and attitudes that a range of healthcare professionals require to provide effective care and treatment to PWID. This is done by using a blended approach that includes co-design and co-delivery by individuals with ID. Existing work will be built on by:
- Developing a resource /good practice guide that can be used by local champions to train their colleagues and share their learning
- Increase the contributions of people with a learning disability and / or family and carers to enable the resource to be fully co-produced
- Disseminating the resource feely to other mental health service and clinicians to improve the care and treatment of this population.
Course Aims:
- Increase knowledge, skills and confidence in providing mental health care to PWLD
Course Objectives:
- Increase awareness of the rights of PWLD and the responsibilities of health and social care professionals
- Explore concerns relating to working with PWLD
- Gain awareness of national policy
- Develop skills in engagement techniques
- Recognise how mental health problems present in this group
- Learn how to adapt mental assessments for PWLD
- Explore how interventions can be adapted
Project Lead: Karina Marshall-Tate – RNLD, Head of Education and Training Estia Centre
Email contact: Karina.Marshall-Tate@slam.nhs.uk
Web address: http://www.slam.nhs.uk/about-us/clinical-academic-groups/behavioural-and-developmental/estia
Twitter feed: @MaudsleyNHS
Title of project: Evaluation and identification of workforce needs to support people with ID across Kent Surrey and Sussex
Lead organisation: Surrey and Borders Partnership NHS Foundation Trust
Aims and objectives: The project will be separated into different phases:
Phase 1: Scoping and identification of issues and solutions
It will be important to evaluate and establish from undergraduate level through to Consultant appointment the training pathways that exist. For ex ample the GMC defines university curricula but it is then the responsibility for each university to interpret and train medical students. The level of input regarding LD and Autism will vary significantly from the different medical schools currently feeding into the KSS region. Further the exposure and training offered in LD to doctors in training, Foundation years, core training in different area through to higher specialist training will differ. It will be vital to establish what is currently being delivered and how this has an impact on future careers. Different Royal colleges have attempted to address this but the extent to which this has been implemented across KSS is unclear.
A mixture of methods from direct interview with individuals in institutions delivering these opportunities alongside curriculum reviews will be undertaken. This will be taken alongside interviews with those people who have trained and chosen to work in ID to understand better the nature of the choices and educational opportunities that led to a career in LD by doctors. The barriers will also be sought and the challenges faced by practicing physicians to understand the training needs will be established. These interviews will also be used to map the pathways available to KSS in terms of what opportunities currently exist for training and at what levels.
Finally it will be important to understand based on Royal College of Psychiatrist/ Royal College of GP documentation as well as discussion with current practitioners in KSS the different roles and models of need for Doctors in LD. Historical approaches are changing and it will be important to evaluate the current needs before recommendations can be made.
This phase will take 6 months.
Phase 2: Conference of peers in Surrey
Current professionals, directors of ID services, representatives of ID service users and ID service users themselves will be invited to training and development days to look at consolidating the finishing of the scoping exercise. Initial findings will be presented as well as questions to help formulate a broader consensus. This may also include presentation from non-medical practitioners to define how these roles are offering alternatives to medical workforce and also where specific needs for doctors remain going forward in the future in KSS.
Phase 3: modelling work based on conference and workshops, evaluation and writeup of report with proposals.
Based on the data collected a thematic analysis of the findings will be developed in order to establish the training gaps in KSS for doctors as well as making proposals for future training needs in KSS in order to deliver the workforce of the future in the LD medical profession.
Phase 3 will be completed the final 6 months
Project lead: Raja Mukherjee – Consultant Psychiatrist, Foetal Alcohol Spectrum Disorder Service
Email contact: Raja.Mukherjee@sabp.nhs.uk
Web address: https://www.sabp.nhs.uk/
Twitter feed: @rajamukherjee10
Title of project: Learning In To Action: Outcomes for Life
Lead organisation: SeeAbility
Aims and objectives:
Programme overview:
A six week, modular training programme will be implemented for all support team members who are in direct contact with people with intellectual disabilities and autism in London, Kent, Surrey, and Sussex (these include LD Nurses, support workers, senior support workers, deputy managers, managers, activities co-ordinators).
Learning Outcomes:
The learners will be able to enhance the quality of life of people with intellectual disabilities and autism by supporting them to identify individual goals and then using evidenced based methodology for skills teaching. These skills will be of added valueto anyone being supported and will enable evidenced based, outcomes focused support enhancing health and quality of life.
Drawing heavily on the PBS Competencies Framework this will be a training programme that provides multi-disciplinary input to enable people to achieve their aims. Individual aims are developed by people supported and their families. It is a modular programme that will teach skills teaching in order to better support people who have autism, intellectual disabilities, sensory needs, and display behaviours that can challenge.
Update:
Project lead: Lisa Hopkins – Chief Executive
Email contact: L.Hopkins@seeability.org
Web address: https://www.seeability.org/
Twitter feed: @SeeAbility
Title of project: Experiences of transition for individuals in emerging adulthood who have been diagnosed with a neurodevelopmental condition. A phenomenological study
Lead organisation: Your Healthcare CIC
Aims and objectives: This is an exploratory project in an area that is not yet well researched. The project is focused around transition from children’s to adults’ services., which has been identified as a service development area need within the boroughs The transition for individuals from children’s services to adult services was identified as a service development area within the Royal boroughs of Richmond and Kingston.
The objectives of the research project are:
- Undertake up to 30 Interviews with service users (focusing on lived experiences)
- Hold meetings for dissemination, and attend conferences to disseminate
- Provide the basis for informing further research and inform other community based projects, development, and further education of the workforce, to provide better care and input for those going through transition in the future
Once completed, the recommendations from the research will also seek to inform the development of workshops and training to help inform the practise of professionals within the organisation as well as the wider Royal Boroughs of Richmond and Kingston. Capturing the voice of service users would enable others to provide better care and input for those going through transition in the future.
Project lead: Ms Casey Bradford – Clinical Psychologist
Email contact: casey.bradford@yourhealthcare.org
Web address: http://www.yourhealthcare.org/
Twitter feed: @_yourhealthcare
Project Title: Exploring & Overcoming Workforce Barriers that may Impact on the Uptake of the Learning Disability Health Check Scheme
Lead Organisation: National Development Team for Inclusion (NDTi) – working in partnership with Learning Disability England, Skills for Care, the Voluntary Organisations Disability Group
Aims and Objectives
Aims:
- complete a scoping activity with relevant groups of the workforce (families and other unpaid groups are also considered part of the workforce) to identify what their awareness of the LDHC is. This will ascertain whether awareness itself is a barrier, for instance are parents/carers/families of children with a learning disability made aware by the services that they use and are supported by that there is a LDHC
- where relevant workforce groups are aware, explore how they support people to access the LDHC and if so how
- where relevant workforce groups are aware but do not support people to access the LDHC, identify and explore the reasons why
- where relevant workforce groups are unaware, explore and identify what educational and / or training intervention(s) would have provided the relevant information and guidance to pass onto young people and adults with a learning disability as well as parents, families and carers
- building on existing good practice/guidance that exists, pilot a small-scale intervention based on the findings from the scoping project, and evaluate this
Outcomes:
- to have completed a scoping project across the geographical footprint of Kent, Surrey and Sussex, Thames Valley, Wessex and the South West
- to have highlighted potential workforce barriers preventing young people and adults with a learning disability from accessing the LDHC
- to have piloted and evaluated an alternative approach to supporting young people and adults with a learning disability increase their access to the LDHC in one or more of the above regions
- to report back any additional major findings that may be of value to future programme developments e.g. if the LDHC uptake is high in an area but then then there are not enough accessible services to address highlighted risks or concerns
- to have provided HEE with clear information about lessons learned and what next steps could be taken to roll this work out. This outcome will be freely shared with all
- to have provided HEE with clear guidance about how appropriate agendas within the NHS and social care can include this topic
- to have provided HEE with details concerning existing good models and systems of workforce education relating to LDHC with all providers across Kent, Surrey, and Sussex, Thames Valley, Wessex and the South West
- to demonstrate collaborative working with people who have a learning disability, their families, carers and throughout this project
- to have developed an easy read summary, and full publication of all findings and evidence-based education resources (if needed) alongside any recommended next steps
- for all findings, reports, tools and resources produced from this project to be made freely available − to host the online version of all completed publications and related resources
Project lead: Madeline Cooper-Ueki – NDTi Programme Lead- Learning DisabilitiesProject lead:
Email: madeline.cooper-ueki@ndti.org.uk
Web address: https://www.ndti.org.uk/
Twitter feed: @NDTicentral
Project Title: Supporting the Development of the Non-specialist Learning Disability Workforce to Achieve Better Outcomes when Working with people who have a Learning Disability
Lead Organisation: National Development Team for Inclusion (NDTi)
Aims and Objectives
Aims:
- complete a scoping activity of all 83 NHS trusts across the south region in England to identify what processes they have in place to meet the NHS Improvement standard set out in Appendix 1
- collate all current practices identified and benchmark them against the Learning Disabilities Core Skills Education and Training Framework to provide assurance and evidence that education providers meet the relevant standards
- undertake a review of the literature with regards to what good might look like when providing education of this kind i.e. what is the most effective and sustainable way to impart this knowledge to the workforce?
- run an international Delphi study to identify if there are any alternative education provisions or systems used elsewhere that can demonstrate effective and sustainable development of the workforce
- either share examples of what “good existing models” are across the region or make recommendations for the development of a new universal education resource/ method based on the framework if there are no sufficiently robust and sustainable existing models,
- share the findings of the Delphi study and the literature review making them freely available to all.
- work with HEE South ID programme stakeholders to develop a regional awareness campaign for all relevant workforces to become aware of all findings and resources output from the project
Outcomes:
- to be able to demonstrate assurance that there are suitable evidence-based education and workforce development systems available for all workforces that carry out health activities
- to be able to report internally which trusts across the region are meeting the required NHS Improvement standards
- to share any existing good models and systems of workforce education with all providers across the region
- if needed to make recommendations that could lead to England’s 1st universal evidence-based workforce development and education resource for all public facing staff that carry out health activities
- to have worked with people who have a Learning Disability, their families and carers to ensure that any education resources are co-produced and fit for purpose
- to have developed an easy read summary, and full publication of all findings and evidence-based education resources (if needed) alongside any recommended next steps
- for all findings, reports, tools and resources produced from this project to be made freely available – to host the online version of all completed publications and related resources
Project lead: Anna Marriott
Email: anna.marriott@ndti.org.uk
Web address: https://www.ndti.org.uk/
Twitter feed: @NDTicentral
Project Title: Supporting Maternity Services to more Effectively Support Women and Families who have Learning Disabilities
Lead Organisation: University of Surrey, International Care Ethics Observatory
Aims and Objectives
- develop and publish the 1st evidence-based guidelines to support the maternity workforce when caring for women and families with learning disabilities
- to develop and produce an education/ training resource that can be used as a test bed to demonstrate the effectiveness of the guidelines, and will become freely available
- to collect, analyse and publish pre – post qualitative/ quantitative data from the maternity workforce and parent / carers’ /families’ perspectives to demonstrate potential outcomes such as – parents keeping their children, improved mental wellbeing for women and families, better workforce subject knowledge, improved staff confidence, and better outcomes for the child etc.
- to provide an evidence-based report not only sharing findings but sharing lessons learned and also recommendations for scaling up the intervention in a sustainable way that will meet workforce needs from a national perspective.
Project Lead: Dr Anna Cox – Research Fellow
Email Contact: a.cox@surrey.ac.uk
Web Address: https://www.surrey.ac.uk/international-care-ethics-observatory
Twitter feed: @iceobservatory
Project title: Delivering Different News 2 – Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals
Lead organisation: The Institute of Health Visiting
Aims and objectives
- To scale up the initial pilot across the south of England – see below for achievements of pilot
- Description and explanation of the lived experience of receiving different news from a health professional
- Description and explanation of the lived experience of providing different news to families by healthcare professionals
- Identifying the training needs for multi-professional health care professionals (including but not just nursing and midwifery staff) who deliver different news
- Developing an intervention toolkit manual to enable delivery of training to healthcare professional
- Piloting the intervention and assessing the feasibility and acceptability of providing the intervention
- To further develop the robustness the initial project and test the sustainability of the recommended intervention across a larger workforce
- To refer the findings from this project to the National Institute for Clinical Excellence for them to further scope, develop and potentially publish the first ever national guidelines of this type.
Specific objectives are:
- To improve the experiences and long-term outcomes of families that receive different news
- To provide all staff that are required to give different news ethical, evidence-based guidelines that will support them and the families to experience the best possible outcomes
- To provide an evidence base for all staff working nationally as to “what good looks like”
- To have worked with people who have a learning disability, their families and carers to ensure that any education resources and guidelines are co-produced and fit for purposes
Project Lead: Dr Esther Mugweni
Email Contact: esther.mugweni@ihv.org.uk
Web address: https://ihv.org.uk/
Twitter feed: https://twitter.com/iHealthVisiting
Project title: Supporting the accessing of audiology services for people that have learning disabilities and autistic people
Lead organisation: Manchester Centre for Audiology and Deafness (ManCAD), University of Manchester
Aims and objectives
This project has two aims. The first is to identify workforce related issues affecting the awareness, knowledge and confidence around the identification of potential hearing loss by the audiology workforce for people with a learning disability (PWLD) and autistic people. The second aim is to increase the confidence of the wider workforce (including service users and families and carers) in accessing audiology services for PWLD and autistic people.
By the end of the project, ManCAD will have:
- Developed and led a local scoping project across Kent, Surrey and Sussex with all relevant groups (people with lived experience, their families and carers) including that of the audiology and associated workforce. It is anticipated that this will identify the current awareness, knowledge and confidence of the audiology workforce in supporting PWLD and autistic people
- Gained multiple perspectives -e.g. from both the workforce and service users
- Identified and compared the experiences of a range of different service users e.g. different age groups from across the life span, different identifications, different levels of ability and support etc.
- Identified the specific experiences of services from both those with prelingual deafness and those have become hearing impaired
- Included a suitably robust sample size of information and data to allow the findings from this project to inform any future local, regional and / or national developments in this area of care and workforce development
- Used the findings from the initial scoping to pilot an intervention/s designed at increasing the confidence of the audiology workforce in support PWLD and autistic people
- Used the finding from the initial scoping project to pilot an intervention/s designed at increasing the confidence of the wider workforce (including that of service users and families and carers) in accessing audiology services for PWLD and autistic people
- Worked with children, young people and adults and their families for both those with a learning disability and autism to ensure that the project is co-produced and fit for purpose
- Worked with the different workforces identified above to ensure that the project is fit for purpose
Outcomes:
- To complete the scoping project across the Kent, Surrey and Sussex geographical footprint
- To highlight any workforce challenges preventing PWLD and autistic people from accessing and receiving effective audiological services
- To highlight and report back on any issues directly related to good practice and barriers that are related to the use of the Accessible Information Standard (DCB1605 Accessible Information 2017) by the audiology workforce
- To pilot and evaluate at least two interventions aimed at supporting both the audiology workforce and the wider workforce to more confidently offer and access services
- To report back any additional major findings that may be of value to the workforce and the relevant groups that it provides services to
- To provide HEE with clear information about lessons learned and what next steps could be taken to roll this work out
- To demonstrate collaborative working with PWLD, autistic people, their families and carers throughout this project
- To develop an easy read summary, and publish all findings and recommendations
- For all findings, reports, tools and resources produced to be made freely available
- To host the online version of all completed publications related to this project
Project lead: Siobhan Brennan
Email address: siobhan.brennan@manchester.ac.uk
Web address: http://research.bmh.manchester.ac.uk/ManCAD/
Twitter feed: https://twitter.com/OfficialUoM
Workforce Development for & with People with Intellectual Disabilities 