“I don’t believe it!” | BLOG09

“……..is it 2019 already?”

What a year 2018 was for people with learning disabilities, their families, and the army of paid and unpaid workforces out there working with a shared aim to make life better. This month we wanted to do things a bit differently. Rather than talking about news and events such as the publication of the NHS long term plan and how they impact people we wanted to use this blog to talk about HEE South ID programmes work

“that remains free to you all”

But before we turn to our projects,  I wanted to share with you an info-graphic that our colleagues Rebecca Dangleben (Senior Workforce Analyst) and Ashley Joyce (Strategic Workforce Modelling Lead) from the Workforce Planning and Intelligence team has put together for us based on the raw workforce data we made freely available to you all back in May of 2018 . The info graphic is free to download (click here) and we hope helps translate some raw data into a picture that some of you will already be aware of, and be an eye opener for others.

Please contact us at SouthID@hee.nhs.uk if you have any questions or queries.

A quick recap

The programme’s origins go back as far as 2013 and have grown from a local office programme (Kent Surrey and Sussex) of work to the only regional programme (South), which has been able to support other regions along the way (London 2017/18). The aim of the programme has always been:

“to create a sustainable and secure workforce supply, for people that have Intellectual Disabilities and/ or Autism, who require support from and/ or access to services”

The programme supports all workforce’s that carry out health activities so is far broader than just transforming care, although all of our work is as relevant to this cohort of service users and people helping them as it is to the wider population and workforce.

The programme team is made up of George Matuska as Clinical Lead, Rhona Westrip as programme manager and Philippa Spicer as senior responsible officer. It also has the addition of a programme ambassador and expert consultant Scott Watkin BEM. Scott’s role is unique within Health Education England.

The programme currently shares all its work and outputs via this HEE supported publicly accessible blog and a newly developed national webpage www.hee.nhs.uk/our-work/intellectual-disabilities

We have a number of completed trailblazer projects, all of which have an easy read summary, final report with headlines, evaluations and lessons learned. If any tools or resources were developed these are also made freely available as well.

Completed projects

The 2015, 2016 and 2018 programme reports can be viewed here: https://www.hee.nhs.uk/our-work/intellectual-disabilities/programme-reports-intellectual-disabilities  

Completed projects include:

  • Workforce development for people with intellectual disabilities: the perspective from people with intellectual disabilities – A project led by the FPLD asking people and their families with learning disabilities what they want from their workforce
  • Report of the #IDHEKSS Staff Recruitment & Retention Coaching Program – A project investigating the use of coaching to develop alternative sustainable approaches to staff recruitment
  • Communicating Effectively & Ethically with Young People with Learning Disabilities and their Families regarding End of Life Care Planning – A project exploring what good care looks like for children and young people on an end of life care pathway that have a learning disability and are going through transition from children to adult services
  • Working with Deaf and Blind Clients – a project exploring how you support a staff team to change their culture/ behaviour to better support deaf blind individuals
  • Epilepsy and Medication Administration Train the Trainer – a project looking at how a provider can offer the best clinical care when primary care is not commissioned to support
  • Health Equalities Framework Intelligence Review – a project that set out to validate the HEF tool and pilot how this can be used in workforce planning of a community learning disability team
  • Evaluation of the LOUD (Learning; Observing; Understanding; Disability) Co-teacher Consultant Group at Canterbury Christ Church University – a project looking at the real impact of co-teachers on student education
  • Picture Exchange Communication System Report – A project investigating the impact of PECS education on a staff and client group post transition from children to adult services
  • Employing People with Learning Disabilities – A pilot project looking at the practical elements to create meaningful employment for people with a learning disability from recruitment and interview, to induction and training.
  • Implementation of the Anticipatory Care Calendar – I pilot programme to test the role out of the ACC across a CCG region to identify better ways to support unregistered staff monitor changes in health status
  • Reasonable Adjustments multidisciplinary team/provider workshop – A series of collaborative workshops aims at non-specialist LD staff from across the MDT including medics to support them to approach reasonable adjustments in alternative and more sustainable ways.

Full and easy read versions along with any tools and resources can all be downloaded from https://idhekss.wordpress.com/a-z/  

In addition we have a further 25 projects currently underway, a list of which can be found below with further details being available in this update link:

  • Positive Behaviour Support Workforce Training
  • A Bridge to Vision, Identifying Sight Loss – Creating Opportunity
  • LD Champion training
  • Working with children and young people with intellectual disabilities and their families, and the broad children and young people workforce that supports, to build an evidence base of education and training needs
  • Improving the Delivery of Different News to Mothers to be and Their Families by Healthcare Professionals – a Research and Training Project
  • A Recovery College – the Collaborative Development, Recruitment and Provision of Training of Peers Tutors
  • Enhancement of the Positive Behaviour Support culture within a secure hospital for people with LD and autism to improve patient outcomes and aid transitions into less restrictive environments
  • My Health Navigator – Establishing a Multi-Agency and Multi-Disciplinary Workforce Model and Competences
  • Supporting People with Learning Disabilities at End of Life: A Training Programme to Increase Staff Skills to Enable People to Meet Their Wishes at End of Life
  • Workforce Competencies in Supporting PWLD and Forensic Histories
  • Dietary Approaches for Metabolic Syndrome, Obesity and improved Nutrition in people with a learning disability: the DAMSON project
  • Springwell – Supporting People with Learning Disabilities and Complex Needs to have a Voice in their Care Planning Process
  • Delivering Positive and Proactive Care: a CPD Programme for Managers and Leaders
  • CHAT – Carers Health and Training
  • Developing Staff Skills to work effectively with Families to Support the Delivery of the Transforming Care Agenda in Sussex
  • Surrey PBS Coaches
  • Strengthening Good Practice in Supporting People with Learning Disabilities and Mental Health Problems
  • South West London Transforming Care Partnership PBS Implementation Plan
  • To Increase Insight and Enhance the Quality of Care Provision for Individuals with Intellectual Disabilities, Through Targeted Training Directed to Support Organisations and Carers to Achieve their Key Functions
  • Reasonable Adjusted: Meeting the Needs of PWLD in Mental Health Settings
  • Evaluation and identification of workforce needs to support people with ID across Kent Surrey and Sussex
  • Learning In To Action: Outcomes for Life
  • Longitudinal evaluation of “Meeting the Health Needs of People with Learning Disabilities” multi-professional simulation training
  • Experiences of transition for individuals in emerging adulthood who have been diagnosed with a neurodevelopmental condition. A phenomenological study

We have also been supporting the development of the Kent, Surrey and Sussex learning disabilities community of practice and more recently the Greater London learning disabilities Community of practice, details of the ongoing work can be found here: https://idhekss.wordpress.com/a-z/#cop  

A summary of all these projects along with contact details can be found at: https://idhekss.wordpress.com/updates/

All that’s left to say is …………..

“happy new year”

Remember if you want to become a stakeholder and get weekly email updates click here. If you want to get in touch to tell us what you think about this blog or any other related matters email us at SouthID@hee.nhs.uk . If email is just not your thing you can also contacts via twitter @HEE_SouthID using the hash tag #SouthID, or via Linkedin or Instagram


2 thoughts on ““I don’t believe it!” | BLOG09

  1. Hi there,

    Just came across this website and found the information very useful, so thank you.

    I just have quick question – I notice you use the term ‘intellectual disabilities’. How does this differ from ‘learning disabilities’ or are they the same thing? I’ve seen ID mentioned used on several occasions over the past couple of weeks but don’t recall ever seeing it before then!

    Thanks for your help.


    1. Good morning Dan

      Thanks for your comments, before I provide a link to the explanation I just wanted to preface the definition with a rational for our choice of this wording. We decided to us ID because we hoped it would support peoples thinking to be forward looking and new rather than just retrospective, also ID has been adopted by the US and academia.


      So how do they differ? the answer is they don’t see this link for more info http://www.bild.org.uk/resources/faqs/#What-is-the-difference-between-the-terms-learning-disabilities-learning-difficulties-and-intellectual-disabilities

      Our final thought really is that though we use ID our programme is about people and they are welcome to identify them selves in any way they wish

      Hope this helps let me know if I can help further

      Best regards

      George Matuska (RNLD)
      Clinical Lead Intellectual Disabilities –South of England Region
      Autism Lead – National

      Health Education England
      Crawley Hospital | 3rd Floor | Red Wing | West Green Drive | Crawley | RH11 7DH

      M. 07825 124 361
      E. george.matuska@hee.nhs.uk
      W. http://www.hee.nhs.uk
      T. @georgematuska

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