June e-update for #TransformingCare Partnerships @NHSEngland

- Easy_read_June_2018_TCP update
- Refreshing TCP Financial Plans for 2018-19 FINAL

gray newspaper

June e-update for Transforming Care Partnerships

Dear all

Please find below and attached latest updates from the national Transforming Care programme including:

  • Coming up!
  • Guidance for TCPs on refreshing their finance plans
  • Positive Behaviour Support – new resource
  • Person-centred workforce examples
  • Making healthy choices to reduce the risk of constipation + short film ‘Poo and You’
  • Ask Listen Do launched 25 June
  • Happy 1st Birthday WellBean 
  • New STOMP pledge for healthcare providers
  • Workforce planning and education support – including Health Education England Workforce Development Fund, and draft Workforce Plans and Support

Please share the attached easy read version and we welcome any feedback from about what’s useful. england.learning.disability@nhs.net

Thanks and best wishes,

NHS England’s learning disability programme

Diary dates and what’s coming up at a glance

Skills for Care’s individual employer funding now open

Individuals who employ their own care and support using a direct payment or their own money (also known as individual employers), can apply for funding for training. The money can pay for training to develop the skills of themselves, as an employer, and their personal assistants (PAs). It can cover the direct costs of training, travel costs or the cost of hiring a replacement PA.

The funding closes on 28 February 2019 and any training must start before 31 March 2019. Find out more and apply at www.skillsforcare.org.uk/iefunding.

If you work with individual employers please share this ‘Money for training’ leaflet with them – you can email Skills for Care to request printed copies on marketing@skillsforcare.org.uk.

Webinar: Transforming Identities through Transforming Care

When: Wednesday 11th July 12.30 – 1.30pm

Do you work in services for people with learning disabilities? Would you like to improve the way people with learning disabilities are supported through transitions?

This Webinar is an important opportunity to hear direct from people with learning disabilities about their experience of moving out of hospital under the Transforming Care programme. Learn about what helps and hinders people when making a transition.

Transforming Identities through Transforming Care – is the title of a paper we published in Jan 2018 in the British Journal of Learning Disabilities (Head, A. Ellis-Caird, H., Rhodes, L. and Parkinson, K., 2018). The paper outlines research involving interviews with 11 service-users that moved out of hospital under Transforming Care. The interviews were used to build a model of the process of moving and this has helped us to make recommendations about how best to support people through this process.

We are currently applying for funding to continue this research. If we are successful our next phase would involve following up the original cohort of people and recruiting a new group. Our aim would be to understand what helps and/or hinders people in being able to successfully remain living in their own homes in the community. We would be able to follow-up some of our original cohort for up to 5 years post discharge.

We feel our research is extremely important for informing how people are supported both during the transition but also post discharge to try and guard against the revolving door of readmissions.

If you would like us to address any specific questions during the Webinar or if there are areas you would like us to focus on in more detail please email louisa.rhodes@nhs.net by Friday 29th June.

To participate in this Webinar please follow the link below and click on register (Next to Event status).


NHS England – first event about the health issues of people with a learning disability over the coming months – 24 July in Birmingham

Events are aimed at people with a #learningdisability, #familycarers and supporters.  We’ll be looking at weight, mental health and flu jabs.

Find out more- https://tinyurl.com/yaubbpws

NHS England easy read newsletter from the Learning Disability and Autism Engagement team

Read the easy read newsletter online to find out about:

  • Supporting children and young people with mental health issues and behaviour that can challenge services
  • STOMP- stopping over-medication
  • Ask Listen Do – helping health, education and social care services to be better at listening to people.
  • Sharing information about support needs (‘flagging’)
  • Meet Ray James- Learning Disabilities Director at NHS England

We would welcome feedback on the newsletter at engage@nhs.net 

Reducing reliance on hospital 

 Guidance for TCPs on refreshing their finance plans

 We are asking TCPs to finalise their finance plans for 18/19 and set out the financial impact in the first two years of the programme.

The attached guidance sets out the ‘ask’ in more detail, please circulate to your TCPs and to colleagues who will need to be involved at a regional level.

Positive Behaviour Support – it happens for a reason!

A resource has been produced to give healthcare staff an awareness of what can cause challenging behaviour in people with learning disabilities and/or autism and what can be done to support people and families before medication or admission become options. It focuses on children and young people but the content is applicable for all age groups.


Building support in communities 

Person-centred workforce examples to support people with learning disabilities and/ or autistic people

 Skills for Care and the Voluntary Organisations Disability Group are developing a series of person-centred examples of workforce development to support people with learning disabilities and/ or autistic people, and they want to know what you think about the draft versions.

They’ve developed 12 ‘worked examples’ that explain what learning and development the workforce needs to support a number of ‘pen pictures’ of people with learning disabilities and/ or autistic people who might be involved in the transforming care programme. Read more about the worked examples and fill in the short survey here.

Improving quality of care, quality of health and quality of life 

 Making healthy choices to reduce the risk of constipation + short film ‘Poo and You’

 It is estimated that half of people with a learning disability are at risk of suffering from regular constipation.

Poor diet, limited physical activity, overmedication and poor monitoring of bowel movements are all risk factors for constipation, to which people with learning disabilities are more susceptible.

Long-term constipation is symptomatic of poor health and causes ongoing reductions in quality life, through discomfort, pain, and the need to take medication. Currently, 97% of the people Dimensions supports with constipation are prescribed laxatives

It is vital that people are supported to make healthy lifestyle choices that support bowel health. This helps to improve quality of life generally and reduce the risk that someone might be hospitalised for constipation.

Managing the risk of constipation is a clear area where those supporting people with learning disabilities must work with healthcare professionals more effectively.

Using tools such as Health Action Plans can help to co-ordinate someone’s healthcare across different practitioners and make sure that everyone has understood the steps that are needed to maintain or improve someone’s health. 46% of respondents to our primary healthcare survey did not have a health action plan.

When everyone works together, long-term problems such as constipation can be very well managed, meaning people can lead healthier, happier lives.

Dimensions have produced a short film ‘poo and you’ – a brief guide to constipation:


New initiative Ask, Listen, Do

We want to tell you about a new initiative called Ask, Listen, Do which has been created to help children, young people and adults with a learning disability, autism or both and their families and carers to feel confident in giving feedback, raising a concern or making a complaint about care, education or support.

With the right support people can then feel that their concerns are listened to and acted on in good time and that organisations tell them what they are doing to put things right.

Visit Ask Listen Do to see what information and resources are available. Lots of organisations are involved with the project and have agreed to support the principles of Ask, Listen Do in these ways:


  • The organisation asks people about their experiences and makes it easy for people to do this
  • The organisation makes sure that the person, their family or advocate know how to give feedback, raise a concern and make a complaint
  • People feel able to speak up when they have feedback, a concern or complaint
  • Everyone knows when a concern or complaint is a safeguarding or a criminal issue, and what must happen


  • The organisation really listens to what has been said and is not defensive
  • The organisation and staff have the skills to listen and understand what it feels like for the person


  • The organisation does something positive about it in good time and tells the person what they are doing to put it right
  • The organisation learns from the feedback, concern or complaint and changes things so the service can improve
  • The organisation improves its services by working with the people that use them, listening to and learning from people’s experiences

Read the easy read leaflet about the Ask, Listen, Do project and its aims.

Please support us on Twitter using #asklistendo and thank you in advance for your interest in this.

Happy 1st Birthday WellBean 

A coffee lounge that provides volunteering opportunities for people with learning disabilities, and those in recovery from mental health illness and addiction, celebrated its first birthday on Wednesday June 6.

The WellBean Coffee Lounge at Tickhill Road Hospital is part of Rotherham Doncaster and South Humber NHS Foundation Trust (RDaSH). It supports people to gain the skills and experience needed to boost their confidence and help them into paid employment.

Lawson Pater, RDaSH Chairman, said: “The year has just flown by and we are very pleased with how popular the WellBean has become. In just one year since opening its doors the coffee lounge has become a vibrant part of the RDaSH community.

“It’s a real success story and all credit goes to our dedicated staff, volunteers and peer support workers for their fantastic work during the last year, with many more to come.”

The WellBean Coffee Lounge is also widely used by Trust staff and partner organisations to host events and promote health awareness.

Over the last year patients and visitors have enjoyed WellBean’s unique blend of barista style coffees, teas, snacks, sandwiches packaged together with health information and giving people a chance to gain vital skills to further their development and recovery.

Over 50 people gathered from across Doncaster to celebrate WellBean’s first anniversary during national Volunteers Week (June 1-7).

Workforce planning and education support

 Health Education England Workforce Development Fund

A workforce development fund has been approved for NHS and NHS funded services. The fund identifies several themes which can support elements of TCP work, specifically highlighting the learning disability and autism workforce in Theme 2 – upskilling for extended & advanced roles in priority service areas. Please contact your local Health Education England workforce lead for more information.

Draft Workforce Plans and Support

In May 2018 the Transforming Care Delivery Board agreed TCPs must submit draft workforce plans by mid-September 2018.

Workforce partners Skills for Health, Skills for Care, Health Education England are available to support you to workforce plan programmes, this includes actions to:

  • Train and help you to write and implement local workforce plans.
  • Undertake workforce information survey and analysis, including identifying addressing gaps in intelligence
  • Identify good practice to help the Children and Young People and Adult Learning Disability and/or Autism workforce and ultimately the support/ care offered
  • Identify education and qualifications pathways for the Children and Young People and Adult Learning Disability and/or Autism workforce
  • Engage effectively with key stakeholders


End of Life Care Planning

A tool kit and You Tube Video have been produced to enable the workforce to communicate effectively and ethically with young people with learning disabilities and their families around end of life care planning. Please see link below for resources and additional information.


Contact your local workforce leads:


Health Education England: charlotte.carr@hee.nhs.uk

Skills for Care: Christine.burkett@skillsforcare.org.uk  / Sally.gretton@skillsforcare.org.uk

Skills for Health: tim.lund@skillsforhealth.org.uk

Midlands and East

Health Education England: lisa.proctor@hee.nhs.uk

Skills for Care: Renny.wodynska@skillsforcare.org.uk  / James.cross@skillsforcare.org.uk

Skills for Health: marc.lyall@skillsforhealth.org.uk


Skills for Care: margaret.sharpe@skillsforcare.org.uk

Skills for Health: jim.moran@skillsforhealth.org.uk

Skills for Health: James.Stephens@wdtrust.org.uk


Health Education England: Marie.lancett@hee.nhs.net

Skills for Care: Sarah-jane.Dale@skillsforcare.org.uk

Skills for Health: Anne.clarke@skillsforhealth.org.uk

National Contacts

Health Education England: Lynne.hall@hee.nhs.uk / Tim.Devanney@wm.hee.nhs.uk

Skills for Care: Marie.lovell@skillsforcare.org.uk / jim.thomas@skillsforcare.org.uk

Skills for Health: Marc.lyall@skillsforhealth.org.uk


Miranda Askew

Senior Stakeholder Manager
NHS England Learning Disability Programme
Email: Miranda.Askew@nhs.net

High quality care for all, now and for future generations


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s