March 18 e-update for #TransformingCare Partnerships from @NHSEngland


Dear all

Please find below and attached latest updates from the national Transforming Care programme including:

  • Coming up!
  • New transforming care finance group
  • CTRs and CETRs helping to keep people out of hospital
  • New Housing Leads for Transforming Care
  • Access of children on the autism spectrum to community CAMHs – new resource
  • New Mencap health campaign – ‘Treat me well’
  • Workforce planning and education support

Please share the attached easy read version and we welcome any feedback from about what’s useful.

Thanks and best wishes,

NHS England’s learning disability programme

Diary dates and what’s coming up at a glance

Invitation to parent carers, carers, organisations working with families and organisations that deal with complaints – 29 March, London

Do you want to make giving feedback, raising concerns and complaints easier for people with a learning disability, autism or both and their families and carers? We want you to help us design and develop resources that are going to be both useful and helpful to families and carers and help them navigate this very complex and stressful system. We want you to be part of a legacy that will make a real difference. For more information about booking onto one of these days and for support with travel arrangements, please contact Diane on

Tel: 07736 484378 or email:

A showcase for excellence in palliative care provision for people with a learning disability – 13 June, London

This conference is for anyone helping to support someone with a learning disability who is reaching the end of life, and those who are bereaved. It includes keynote speeches from NHS England’s National Clinical Directors for palliative care and for learning disabilities – Professor Bee Wee and Dr Jean O’Hara.. Please see the attached flyer and visit www.pcpld.ord

NHS70 Parliamentary Awards

As part of the NHS turning 70 this year, MPs are being asked to nominate individuals and teams delivering health and care in their constituencies for one-off national awards. It’s an excellent opportunity for NHS organisations and others to engage their local MPs, boost staff morale, and help showcase the best of the NHS to a national audience.

Several of the categories are really relevant to learning disabilities – especially the ‘person-centred care champion award’ and ‘the patient and public involvement award’ – and reading through the criteria I’m sure you’ll all be close to well-deserving nominees. How it works is that people/ organisations/ services fill out the nomination form using a simple template and submit it to their MP. MPs then choose who they want to nominate, a maximum of one per category. A template email or letter to MPs has also been provided.

In short, it’s a great way for TCPs, services and individuals to engage their local MP, and to get recognition for exemplary work!

Please share with anyone you think would be interested. All the information and materials are available here:

If you have any questions please contact the NHS England public affairs team

Reducing reliance on hospital

 New transforming care finance group

We’ve had feedback from a number of TCPs on issues relating to how funding flows around the system to support transformation. Following that feedback, we have established a new cross-system transforming care finance group, including representation from NHS England, CCGs and local government, to look at issues of concern. The group has now had its first meeting and is reviewing some of the issues raised by TCPs, such as the way the Funding Transfer Agreement (FTA) works for moving funds from NHSE specialised commissioning to local commissioners. We will keep you updated on progress and are grateful for the input of colleagues from across the system in giving us feedback on the issues you’re facing.

If you are interested in giving feedback please contact

CTRs and CETRs helping to keep people out of hospital

Care and Treatment Reviews (CTRs) and Care, Education and Treatment Reviews (CETRs) are part of NHS England’s commitment to transforming care for people with a learning disability, autism or both. Since 2015, thousands of CTRs have been carried out. They are helping to reduce the number of people going into these hospitals – latest figures show that 80% (four out of five) of community CTRs have led to a decision not to admit someone to hospital.

A new e-learning programme has been designed to support people who carry out or support C(E)TRs telling people about the history of CTRs and what makes a good CTR. It also prepares people for going into  secure unit and what to expect. It was developed with experts by experience, commissioners and clinicians who have been involved in CTRs. This e-Learning programme is for expert advisers – both experts by experience and clinical advisers, commissioners, provider services and other professionals, tribunal and legal services, and health and social service staff. Access the CTR e-learning without registering via open access.

There are a number of resources to help with CTRs:

My CTR planner – this booklet helps before, during and after the CTR.  It is about consent, planning a CTR and what happens next. People can either fill it in on a computer, or print and fill it in by hand.

My care and treatment review booklet – this booklet tells you all you need to know about CTRs.

The policy for care and treatment reviews changed in March 2017.

This booklet is about becoming an expert by experience as an expert adviser on care and treatment reviews.

Parents at Bringing Us Together have written a guide for family carers which offers further help and advice about CTRs.

Care and treatment reviews – The policy for care and treatment reviews changed in March 2017. See the latest policy:

Building support in communities

 New Housing Leads for Transforming Care

NHS England has recruited nine new Housing Leads into the Transforming Care programme to support TCPs to plan for the accommodation required to enable those with a learning disability and/or autism to live in the community. These staff include:


Philippa Hughes

Fred Grand

Jane Bellwood


Gill Leng

Andy Kyle

Wendy Hicks


Lee Simmonds

Amy Swan will continue to manage the housing work stream as the National Housing Lead, but will also pick up responsibilities as the London Housing Lead.

Access of children on the autism spectrum to community CAMHs – new resource

Autism Alliance UK has produced an online resource for families, carers and professionals relating to advice and guidance for accessing CAMHs. This is with consultation from the National Autistic Society, NHS England, advocacy representatives and care professionals.

Chair of the Autism Alliance Jane Howson said :

This priority was decided upon due to the number of stories that we had heard from families who had struggled with obtaining the support that they needed.

“This toolkit is our attempt to provide information and examples of good practice / ideas all in one place that might make it easier for service providers, commissioners and autistic young people and their families to attain good access to the services and support needed.”

Here’s a link to the new toolkit:

Improving quality of care, quality of health and quality of life 

 New Mencap health campaign – ‘Treat me well’

 Mencap is campaigning to transform how the NHS treats people with a learning disability in hospital – their brand new campaign, ‘Treat me well’ is calling to end unequal hospital care. Find out more about the campaign including how you can get involved and show your support

Workforce planning and education support

Workforce partners Skills for Health, Skills for Care, Health Education England are supporting you to workforce plan and design education programme for the whole of England this includes actions to:

  • train and help you to write and implement local workforce and education plans.
  • undertake workforce information survey and analysis, including identifying addressing gaps in intelligence
  • identify good practice to help the Children and Young People and Adult Learning Disability and/or Autism workforce and ultimately the support/ care offered
  • identify education and qualifications pathways for the children and young people and adult learning disability and/or autism workforce
  • engage effectively with key stakeholders

Contact your local workforce leads:


Health Education England:

Skills for Care:  /

Skills for Health:

Midlands and East

Health Education England:

Skills for Care:  /

Skills for Health:

Kent, Surrey, Sussex and London

Health Education England:

Skills for Care:

Skills for Health:


Health Education England:

Skills for Care:

Skills for Health:

National Contacts

Health Education England:

Skills for Care: /

Skills for Health:


Miranda Askew

Senior Stakeholder Manager

NHS England Learning Disability Programme


NHS England

6th Floor | Skipton House | 80 London Road | London | SE1 6LH

High quality care for all, now and for future generations

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